I spent a day with CHRONIC PAIN SUFFERERS

  görünümler 827,821

AnthonyPadilla

AnthonyPadilla

10 aylar önce

I spent a day with people who experience CHRONIC PAIN to learn the truth about living with incessant, agonizing pain. Sponsors ▸ betterhelp.com/padilla to get 10% off your first month!
🎙THE PODCAST (UNCENSORED)
Spotify ▸ open.spotify.com/show/5aOLuPe...
Apple ▸ podcasts.apple.com/us/podcast...
💥NEW YOUTOOZ FIGURE: youtooz.com/products/anthony-...
🧨HUGE thank you to:
▸ Kelsey - linktr.ee/kelseydarragh
▸ Zach - trshow.info & korndiddy
▸ Ryan - neurogum?hl=en & getneuro.com/
🗯MORE EPISODES…
▸ PTSD - trshow.info/watch/KiZoqiplT6w/video.html
▸ TERMINAL ILLNESS - trshow.info/watch/pR_okZJHLvw/video.html
▸ ADHD - trshow.info/watch/jICroNO55RA/video.html
🎥Crew
▸ Creator, Director, Writer, etc. - Anthony Padilla
▸ Executive Producer - Alessandra Catanese
▸ Producer, Co-writer & Research - Elise Felber
▸ Director of Photography/Gaffer - Kathy Sue Holtorf
▸ Social Media Manager - Mallory Myers
▸ Editor - Mike Criscimagna AKA Mork Crispy
▸ Assistant Editor - Patrick Horba
▸ Assistant Editor - Ash Duckworth
▸ Sound Editor - Gareth Hird
▸ Post PA - Levi Villalpando
🎵Theme Music Composer - Matt Good AKA The King of Emo
🖼Portrait painted by: Rhianna Robles - zerogattsu
🦥Slade mascot built by: The Pastel Prince - trshow.info/on/7wq2U4F.html...
📺3D animations by: Jacob Dalton - jacobdaltonvfx
📢BE ON THE SHOW
▸ If you are part of an underrepresented subculture or live a lifestyle you feel is not widely understood and would like to be interviewed by me, email inquiry[at]pressalike.com with your subculture in the title of the email.
❗️You dug this deep into the description. You owe it to yourself to subscribe ▶ trshow.info_cent... or get more at anthonypadilla & anthonypadilla

YORUMLAR: 3 073
AnthonyPadilla
AnthonyPadilla 9 aylar önce
come back next week for *I spent a day with SURVIVORS OF HOSTAGE SITUATIONS* UNCENSORED ON SPOTIFY ▸ open.spotify.com/show/5aOLuPenneHbhLh05fmkeu UNCENSORED ON APPLE ▸ podcasts.apple.com/us/podcast/i-spent-a-day-with/id1550213250
Foster  Thompson
Foster Thompson 4 aylar önce
I learn so much every time I watch an I Spent A Day With Blank, and I love seeing the people explain their unique situation! P.S. I can’t wait to learn about survivors of Hostage Situations.
A
A 8 aylar önce
Ppp0
Diary of A Wimpy Gamer Girl
Diary of A Wimpy Gamer Girl 9 aylar önce
Thank you for this video. It makes me feel like I'm not alone in the struggle.
Nana Bowana
Nana Bowana 9 aylar önce
If you ever do an Episode on CFS (Chronic Fatigue Syndrome) I'd be happy to give input. It's similar and somewhat aligned with Chronic Pain, but I and others have it without any pain, just the fatigue.
Monét Murphy
Monét Murphy 9 aylar önce
Hi Mr. @AnthonyPadilla I was super excited about this episode because as a young black woman (31) who suffers daily with sickle cell anemia and avascular necrosis I anticipated listening to an episode of stories I was certain to empathize with. While collectively relating to the universal reminders of aches I was disheartened but not surprised that there were no underrepresented voices in a rarely acknowledged but prevalently diverse space. The narratives of pain were barely recognizable because I could not see the societal stigmas and medical mistreatment that comes with the now commonplace practice of racial biases. Black History Month is an excellent time to uplift those voices whose stories are stifled by the excessively amplified and often deliberately suppressive white and non-black people of color's voices. Sufferers of polycystic ovary syndrome, fibromyalgia in diabetic cases, many forms of cancer, and sickle cell anemia often deemed the "black diseases" are disproportionately affected and yet are unheard from in this amazing conversation you had with the world. I understand it is my responsibility to create the content I wish to see and actively champion those of my own community. I just chose speak up because as one of your long time followers I actively consume, share, and support your channel for the platform you give to often overlooked individuals captivating subcultures, and compelling niche groups. I hope in the near future you consider making a continuation to chronic pain with even more inclusivity, you look into the world of sickle cell anemia or you explore how different cultures manage their health. That last one could really be an eye opener to the multiple perspectives of vaccination hesitancy in the poc community. I hope in sharing I could offer my positive criticisms and be not just another empty internet opinion. Thank you so much for using your platform for the sake of empathy and understanding. -Monét Murphy
ThatGingerKitty
ThatGingerKitty 9 aylar önce
"if I'm not talking about it, I'm in pain. If I'm vocalising it, something is really going wrong" Damn that resonated so hard.
sarahwithstars
sarahwithstars 2 aylar önce
Omg me too!!
Brittani W
Brittani W 7 aylar önce
Yes yes yes!
Anam Siraj
Anam Siraj 8 aylar önce
True I tell my mom all the time I may look fine from the outside but I'm in pain sometimes I feel like I'm used to it and only vocalise when it's too much to bear..
M
M 8 aylar önce
Same
ThatGingerKitty
ThatGingerKitty 9 aylar önce
@Kittikat4124 I feel that also just got a fibromyalgia diagnosis after years of simply not realising that not everyone is always in pain and it being made worse by a shoulder injury.
Regan Blawn
Regan Blawn 9 aylar önce
“To get a diagnosis is so affirming” that is so true, often people think of diagnosis’s as bad things but in reality they’re the first step in managing pain. To have your pain validated when you suffer from an invisible illness (I do myself) means everything
Elizabeth Brown
Elizabeth Brown Aylar önce
💯
Legend's Warble
Legend's Warble 2 aylar önce
Agreed. After my own struggle for diagnosis, I always congratulate people when they tell me they've gotten a diagnosis because I know how hard it is to get one. I straight up had a medical professional tell me that I didn't fit the demographic of people who usually have my diagnosis so I should try to get my diagnosis revoked.
kdtfiles1
kdtfiles1 6 aylar önce
So true. For as long as i could remember my knees had always hurt, doctors always shit it off as “growing pains”, no matter how it got they ignored it. Year after year. Always swollen, hot, throbbing. Couldn’t walk without limping. I started taking tylonol and max strength advil daily, just to take the edge off. By the time i was 13 i was taking 6 pills every 5 hours and they still refused to believe it was anything but growing pain and “id grow out of it”, even though hadn’t gotten any taller in two years… until a school bully tried to break my leg. Slammed my knee, bent it 90 degrees the wrong way, without it breaking. ONE scan later, finally they believed me i had a reason to be in pain. Was validated and diagnosed with malformation and degeneration of both knees. Tendons aren’t attached in the right places, so every bend of the knee micro dislocates the knee cap, pulls them sideways rather than up/down and grinds them across the bones/nerves. The reason my knee didn’t break was because of the malformation. Both knee caps were already damaged, Cartlege and ligaments shredded, and area on both femurs and tibias had areas og grinding and damaged. To this day I still am in constant pain (i need replacement and reconstruction surgery on both knees but can’t afford it) and i have to be careful walking as my knees have a tendency to just buckle randomly or hyper extend backwards. Couple that with multiple other illnesses and chronic fatigue, everu waking moment is a challenge.
SleepyBun
SleepyBun 6 aylar önce
@Regan Blawn oh absolutely- getting a diagnosis is closure and it feels so reassuring knowing you’re not going crazy or something…i’m a person with invisible chronic illnesses
Peanut Butter
Peanut Butter 6 aylar önce
I've been telling my mother about how much pain I'm in and how my body doesn't feel right since I was 11 but she never believed me, fast forward to 19 and Ive been diagnosed with scoliosis and am seeking diagnosis for my other chronic pains which I believe is something along the lines of POTS or/and fibromyalgia, unfortunately I've come to a halt because I developed agoraphobia and can't reach any resources currently so the pain is just getting worse and worse but I just know that when I can finally get out again and the doctors figure out what's wrong my life will get 100% better because I'll finally know what I'm meant to be researching pain relief techniques for
Beeewitch
Beeewitch 9 aylar önce
I have nerve damage in my spine and arm. This was incredibly relatable and emotional to watch.
Emma Dums
Emma Dums 9 aylar önce
The timing of this was incredible. I was finally diagnosed with Ehlers Danlos Syndrome a week ago today, after years and years of being written off and dismissed by medical professionals. It’s so important to raise awareness and understanding of chronic pain.
Pocket Luna
Pocket Luna 3 aylar önce
Also an EDSer here!
Katrina L
Katrina L 5 aylar önce
They finally said I need to see a Geneticist. 4 different doctors are saying most likely. The constant joint pain is exhausting mentally and physically.
Megan Hoppie
Megan Hoppie 5 aylar önce
i just got diagnosed too!
Cutegirlmagic
Cutegirlmagic 7 aylar önce
I also EDS and I have happy that you finally got diagnosed 💗
I don't Know
I don't Know 8 aylar önce
OH MY GOD FINALLY SOMEONE ELSE WITH EDS!!! I already had to have surgery once for mine a few years and I need another soon and i was originally told at 5 I probably have it and then we moved and my new doctor just said I was depressed. Literally I still don't have a diagnosis, yet my mother got diagnosed the week after I went in for mine. They didn't even try to send me to therapy or medicate me. Like how tf does my bones dislocate and me hurting constantly and taking forever to heal make me depressed??
TheCrypitd
TheCrypitd 9 aylar önce
I love how Zach shout out is just: “listen to disabled people”
Mary M
Mary M Aylar önce
@Maddi Horsburgh I've just opted for doctors who listen and believe me instead of "well informed specialists" who are so arrogant they think they've seen it all and don't listen to ppl who may be presenting differently so they don't believe you or say it's all in your head, weight (too thin/heavy), etc. I'd rather have a compassionate Dr than a Dr who thinks they have all the answers and forces their treatments on you when they might be hurting more than helping.
🦔 𝐿𝒾𝓈𝒶 𝐸𝓃𝑔𝓁𝑒𝓇𝓉
🦔 𝐿𝒾𝓈𝒶 𝐸𝓃𝑔𝓁𝑒𝓇𝓉 4 aylar önce
I’ve been waiting for someone to do that 😬
Lily Dogkid
Lily Dogkid 4 aylar önce
Zachhhh yas plz listen to disabled ppl we need help too
Maddi Horsburgh
Maddi Horsburgh 8 aylar önce
Simple, but so greatly overlooked. If doctors listened to people with invisible pain it’d make a world of difference
Hannah Hester
Hannah Hester 9 aylar önce
I knew it was Zach from Try Guys! Doctor Mike did a video about him earlier this week too.
Brittany Helgerson
Brittany Helgerson 3 gün önce
Thank you for sharing content like this. As someone who suffers chronic pain everyday from a car accident I experienced being thrown out half a football field, pain is such a hard thing to get use to or to get help from. This video gives me hope to maying getting help someday like I need. (Still a work in progress)
Karina Wilson
Karina Wilson 9 aylar önce
As someone with EDS, I appreciate that this episode has started conversations about chronic pain. However, I feel like we've heard Kelsey and Zach's stories before because they already have such huge following and platform. As much as I like them both as people and have followed them for several years, I feel like it would have been better to use this opportunity to hear from lesser known content creators or (ideally) people who aren't content creators at all because the lifestyle that they live isn't at all the same as your average person with chronic pain. We don't all have the same access to the different kinds of pain relief mentioned in the video, for example, and flare up or not, we still have to do the usual morning commute to work etc.
MegoRex
MegoRex 25 gün önce
I have the vascular type of EDS I have yet to see any content creators with it..
Kamryn
Kamryn Aylar önce
I have EDS H type (& 2 other chronic issues), if anyone else here does I’d love to chat with others❤
sarahwithstars
sarahwithstars 2 aylar önce
These people can work. Where are the people truly crippled by chronic pain, living in a constant state of wanting life to end.
Asia Rose
Asia Rose 9 aylar önce
Yeah this honestly. I am happy for them both but they seem to be very lucky in their situation compared to the average person suffering with chronic pain. I want to see someone who has to manage a job or school and maybe even kids as well to talk about how they manage it. Personally I am working part time in retail and still had to ask for less hours because I am just so fatgiued and burnt out after dealing with the pain from when I do work. It's too fast paced and physically demanding, and I am struggling to get a job outside of retail and food.
John Mitchell
John Mitchell 9 aylar önce
Or we live alone and have no support from others
tash dash
tash dash 9 aylar önce
I have endometriosis, it’s a chronic illness, degenerative and has no cure. I’ve always got a baseline of pain just as Zach described. When I’m having a bad flare up, which can happen anywhere at anytime, even tho I take hormonal therapy every day (which has messed with my mental health severely) I look like I’m pregnant, can’t stand, feel nauseous and often throw up. If happened on a bus once, and I sat on the disabled seat as there were no other seats. I’m a teenager, I look “healthy”. But it was either sit there or sit on the floor, mind you there was no one else who got on the bus for the rest of my trip. This has happened a few times and almost every time someone will feel the need to tell me I’m doing something wrong for sitting when I physically cannot stand. 1/5 people are disabled, and 3/5 disabled people have an invisible disability or illness. Never question someone’s struggles just because of what you can see, particularly when it’s a stranger you know nothing about. I’ve also been told just to take ibuprofen, I had to fight for a diagnosis, I asked for help about having severe pain during sex and a male doctor told me to have some wine and just bare it because it’s supposed to be better for the man. I’ve doctors refuse to believe my condition could be as bad as I experience because I’m young, even though every woman in my family has it, and many of them have even had hysterectomies (removal of female reproductive organs) to get rid of their pain. My pain is real, it affects my life every day, I now have severe anxiety surrounding medical professionals because of how hard I had ro fight for my own body and pain to be taken seriously
Night Sky
Night Sky 2 aylar önce
@tash dash oh I feel you 😭😭o
tash dash
tash dash 3 aylar önce
@TiffanastI I’m so sorry, I believe you, you’re the expert on your body, and it’s bullshit that it’s “the computer” that’s something my parents would say too. Stay strong, I get bad migraines too, I’m the meantime while ur still looking trying to get some help, looking up “migraine self massage” is the one thing that can get me to sleep when the pain is too bad. Sending so much love and courage 💝🌸
TiffanastI
TiffanastI 3 aylar önce
Theres no Episode on the pain I feel, I have chronic migraines. Nobody believes me, I can't get real diagnosis on it, so I just have to take ibuprofen. Since I'm young I can't get an diagnosis by myself. It's stressful to be in the situation to not know what's wrong with your body. I struggle to sleep because of it. I'm afraid to tell my parents because they will say its the computer, but I haven't been online for a day and still feel that same pain.
Shan
Shan 5 aylar önce
@Danielle G it might have reached the nerves
Danielle G
Danielle G 5 aylar önce
I think I may have endo too but still haven’t gotten diagnosed. Does it make your legs hurt? I have excruciating leg pain that radiates from my ovaries to knees
Soggycereal
Soggycereal 9 aylar önce
Doctors just DON'T care, it's insane, it's especially hard when you're poor and your insurance gives NOTHING for even temporary help. If you don't know what you have, you just have to search online. Having an issue like this really makes you despise the HC system, atleast here in the US. So my mom, the one who deals with this, not me, has vouched to never even go unless absolutely dire, and as said, let it pass.
Heather Larris
Heather Larris 3 aylar önce
same here
Glory💖🦋
Glory💖🦋 5 aylar önce
me to btw using my sisters acount
Soggycereal
Soggycereal 8 aylar önce
@Zarah Shabs My family has been constantly switching and even tried many out of town for it 😩 After I sent that comment had a situation of one who didn't even provide wheelchairs for people that can't walk around a huge department - and the main issue, he got mean to us and put us down for being patients like what even!? It just has been a topic for us that we can't escape and could just complain about tons lol. But anyways, thanks for your work! It's just been our experiences and of course goodluck to well, people who do good simply.
Zarah Shabs
Zarah Shabs 8 aylar önce
this is so so sad to hear... as a current medical student i can tell you there are HC professionals (and newcomers) who want to listen to all the concerns of patients, esp those concerns that are not heard. i know that's a top priority for me! i totally understand that for many, all you have experienced is HC pros who dismiss you and it's tiring to advocate for yourself. keep switching doctors until you find one who will pay attention to you and don't give up hope! we are out there :)
YomiYomi
YomiYomi 9 aylar önce
Ive heard about kelseys and zach’s stories about chronic pain many times and i am very glad theyve been chosen for this interview :] hearing their pov with a more in-depth conversation is really insightful and informative
Mingo
Mingo 9 aylar önce
Love the pfp
KittyKat Gaming
KittyKat Gaming 9 aylar önce
I have what Zach has, which is much more rare in females so took awhile to get diagnosed. It’s miserable. Absolutely life changing miserable.
Lily Claire
Lily Claire 9 aylar önce
Love the profile hereheheh
Teehee Hello
Teehee Hello 9 aylar önce
@Gumi Cherryblossomyes! People are often so rude about his participation in physical activity saying "he didn't even try" and stuff as if he isn't probably in unbearable pain. People often conveniently forget about chronic illness and other very valid limitations in this regard.
Gumi Cherryblossom
Gumi Cherryblossom 9 aylar önce
Same, I think people in general keep on forgetting that Zach have a condition that forces him to in constant pain.
twilightmoon311
twilightmoon311 9 aylar önce
"It starts in the brain, but not that way!" I think ppl forget that the brain isn't just for thoughts, there are chemicals & neurons & such that can really mess you up. No matter how much you "think the pain away" its not going to happen. Hang in there guys. ♥
Morena G.
Morena G. 7 aylar önce
THANK YOU!!!! It’s like saying just think those crazy thoughts to someone who’s Schizophrenic!! The brain is so powerful like you said it full of chemicals & neurons. If that was the case not one person would suffer…🥺🙏🏽💜
Layanxoxo
Layanxoxo 9 aylar önce
As an 18 year old with chronic pain, the hardest part has been accepting the fact that I’ll never be pain free and I might have to take meds for the rest of my life. It’s almost been a year since I’ve been diagnosed and I still can’t stop feeling anger and disappointment that my body won’t work properly. Thank you for this video, I feel extremely validated.
lol idk haha
lol idk haha 2 aylar önce
As a fellow pain sufferer I’m wishing you all the best.
Heather Larris
Heather Larris 3 aylar önce
same. Sorry to hear you deal with it. What condition do you have?
Deezy
Deezy 3 aylar önce
I was 23 when I first started feeling what is now the chronic pain I deal with. Its normal to be frustrated or grieve the fact that you may not live the life you thought you were going to. But therapy can help you deal with those thoughts and emotions
TotalWeirdo
TotalWeirdo 5 aylar önce
I literally nearly cried at the 'mourning your past self' section. For me it's a constant journey of processing all of the people I could have but now will never become. Thank you for sharing this message.
Legend's Warble
Legend's Warble 2 aylar önce
For real. That was a huge part of the process for me. Learning my new limitations and accepting that I probably would never be as good as I was again was hard but necessary. It took years but it made me more comfortable with myself
Legend's Warble
Legend's Warble 2 aylar önce
For real. That was a huge part of the process for me. Learning my new limitations and accepting that I probably would never be as good as I was again was hard but necessary. It took years but it made me more comfortable with myself
Elisa G
Elisa G 9 aylar önce
I totally relate to this. I was recently diagnosed with fibromyalgia because my doctor couldn’t figure out what I had. I had constant pain in my legs. Clothing was painful, just wearing a bra felt like I was wearing a back pack full of bricks. I couldn’t later clothing for winter. I was constantly dizzy and fighting migraines. It was just getting worse and worse. I couldn’t walk. I felt best laying down. One day it was so bad that I couldn’t get out of bed in the morning. My dad and his gf took me to the hospital. Turned out I had hypothyroidism and adrenal insufficiency. Your thyroid is supposed to be between .5-5.0. Mine was 24.60. But the real issue was the adrenal insufficiency. My blood pressure was 60/40 when I got into the hospital. Which is close to death. The reason I felt better laying down is because it was making it easier for my blood to get to my important organs. The doc asked me at one point it I wanted to be resuscitated if needed. I had to actually think about it because of the pain. In the car to the hospital I thought I was dying, I didn’t think I would make it. And I was thinking about who would take care of my dogs, who would get which items of mine etc. happy to say the meds are helping and I’m on the mend. Today was my first day leaving the house since getting sick and going out to do something. It felt amazing!
Luisa Godinho
Luisa Godinho 2 aylar önce
I’m really so happy for you, that’s amazing ♥️
Morena G.
Morena G. 7 aylar önce
Gentle hugs….I also have that. I was diagnosed when I was 21yrs old. I am now 45yrs old.
Kallie Pankau
Kallie Pankau 8 aylar önce
I have fibromyalgia as well, I’m proud of you :)
NeedToRead _
NeedToRead _ 9 aylar önce
I'm 19, and the most frustrating thing is explaining that I'm in pain. Some days I can't walk, other days I just am hurting. As soon as I could talk, I was complaining about my back and hips. I'm going to the doctor for the first time in years this week. I've always been pushed to the side, so I'm really nervous I'll be ignored.
Deezy
Deezy 3 aylar önce
I hope your doctor visit went well
Aki Kimberly
Aki Kimberly 6 aylar önce
Keep fighting. Be stubborn. Be annoying. Get it through their prejudiced, thick skulls that your pain is REAL and needs HELP.
Krazy Kat14
Krazy Kat14 6 aylar önce
I’m the same way! I’m the same age and I feel like my body shouldn’t be this way since I’m still so young. My pain started in high school and I finally got diagnosed with juvenile fibromyalgia and a few pinched nerves. Luckily I got diagnosed a little quicker that most people because I had the same symptoms as my mom but it still took a very long time for someone to give me an answer.
wallflower
wallflower 6 aylar önce
@NeedToRead _ yes. I really hope u meet a doctor that will give u a straight answer. It will b frustrating but I hope u get there soon. Good luck w it and I hope u do wtv u can atm to feel better Xx
NeedToRead _
NeedToRead _ 6 aylar önce
@wallflower thanks, it didn't go as well as I'd hoped. Maybe I should find a different doctor some day T-T
Boydgraud
Boydgraud 8 aylar önce
“To get diagnosed is so affirming” this hit me so hard, it took me 5 years to get diagnosed.
Ryann Starr
Ryann Starr 9 aylar önce
You should do "I spent a day with people who have fibromyalgia". Both my best friend and I suffer major fibromyalgia (another form of chronic pain/fatigue) and it is LIFE altering. From fibro fog, deep body aches, and the inability to do simple things like driving and cooking and even showering.
pr1nc3ssc4pric0rn
pr1nc3ssc4pric0rn 2 aylar önce
I've had Fibromyalgia symptoms since I was 16. I got diagnosed at 21, and no one believes me. I'm always alone, but it's okay. I'm finding ways to manage I guess.
Heather Larris
Heather Larris 3 aylar önce
same here. I think nobody really understands how awful it is. I've heard that it's worse than childbirth
Persephone Minecraft 👑🎗
Persephone Minecraft 👑🎗 3 aylar önce
True, fibromyalgia sucks. Especially if you throw migraines onto them, because fibromyalgia on its own is awful.
Hail
Hail 5 aylar önce
@Kaylea Dawn 🌺 unfortunately yes, it’s more of a “process of elimination” thing because there isn’t a test for doctors to specifically determine it’s fibro. Usually you get tested for different diseases (lyme’s disease, lupus, rheumatoid arthritis, etc.) to see if it’s NOT that, and then eventually doctors whittle it down to it being fibro. There are a few key symptoms when diagnosing fibro, such as the “trigger points” across the body, fibro fog, chronic fatigue, muscle soreness, pain location/duration, etc., but other than that it’s pretty hard to tell. And unfortunately there still isn’t a lot of research being put into it either, so most-if not all-people with fibro have issues with being diagnosed. It’s a looooong uphill battle😅 I hope you are able to figure out what you’re struggling with, we’re here for you!
oh barbatos
oh barbatos 5 aylar önce
@Kaylea Dawn 🌺 yes, it honestly takes so much time to officially diagnose, because it doesn't show up on blood work, MRI, xray...its an nervous system disorder as I believe it, as some doctors seem to call it. They say we have an "invisible disease" which basically it is, to which why some doctors overlook it as lime disease, or lupus. Since it has the same symptoms as those do. It took me about 2 years to get fully diagnosed, and actually I'm still IN the progress with it by my. Rheumatoid doctor
Kazutoification
Kazutoification 9 aylar önce
Just out of curiosity, for Kelsey and Ryan, it seems like the 'source' of their chronic pain came as a result of certain nerves being 'scrambled.' Would it be possible for a doctor (preferably one that specializes in nerves) to 'check' for any damaged pathways and surgically repair the damages? Or is this just science fiction?
Asia Rose
Asia Rose 9 aylar önce
@Apprentice I also have fibro and just got into herbs a couple weeks ago! I have been smoking weed for years but tolerance got too high and pain was just not being treated anymore so I turned to herbs and did my research. I have skullcap, mullein, lavender, and chamomile for pain and destressing. If you're comfortable talking about it, what herbs have you tried and found to be helpful?
Beth Manship
Beth Manship 9 aylar önce
Neurology is really behind other branches of medicine. We hardly know anything. Hopefully in future that will change.
Opossum
Opossum 9 aylar önce
Nope. My step mom has what Kelsey has and the only “cure” is cutting/removing the nerve that has been damaged. Half of your jaw will be numb/have no feeling but you’ll have no pain if you are lucky. There’s been cases where even this doesn’t work though. There’s meds that can help but no a doctor wouldn’t be able to repair the nerve because that’s just not how they work.
Kaleysia
Kaleysia 9 aylar önce
@Max thanks to a relatively new technique of microscopy we actually know now how general anasthesia (that you breath in) works. But like, only since the last year or two. It's crazy to think how many things in medicine are "just" proven to work without actually knowing how exactly.
MyLittleGreenHairdedMermaid
MyLittleGreenHairdedMermaid 9 aylar önce
There is little known about the brain and nervous system, so yes a lot of that thinking is just sci fi fantasy at the moment. Maybe one day they'll know more
TidusPoorPants
TidusPoorPants 9 aylar önce
Literally just today I had a specialist tell me that my pain is 'normal' yet I am confined to a bed, a dark room, and so exhausted I sleep 20 hours. People REALLY need to listen to disabled people, their pain is real and dismissing it only results in more pain
ApplePeachBird, Duck Master
ApplePeachBird, Duck Master 7 gün önce
Yay AMPS buddy! It sucks, and though it is fading for me, after a month of intensive in hospital pt and ot last Christmas, it still takes maintenance and is super draining. A bunch of other side conditions also are impacting me pretty severely, and it sucks feeling guilty for being a burden even when it’s something you really never got a say in. Hope you are doing ok, with some bright moments to help you along the way!
dannielle acnl
dannielle acnl 9 aylar önce
I have Ankylosising spondylitis, the same as Zach and I had listened to his story after I was diagnosed. Yet this interview was much more in depth about the brain/psychology part of a disability/chronic pain which I appreciated. I cried at the part about feeling like a burden to other people and trying to prove that you’re in pain. As well as mourning your past self which I felt like I was alone in, I started geting pain at 16 I’m now 21. My pain feels like it’s back to the beginning when it was unbearable and uncontrollable. I also wanted to point out to other people that might also be going through a really bad flare up etc. When Zach said I’m not defined by my pain, my pain isn’t my identity it isn’t me and I’m not letting it control you. There has been once or twice that I’ve felt like that but right now at a time when the pain and disease is winning in my battle, I want people to understand that I myself am suffering and I guess letting the disease win and I am letting it define me. And that’s ok to a certain extent, I understand that I need a wheelchair if I go out, I need to ask for help, I need to sometimes cry about my past and my future that might be difficult, etc. Just know if your going through that stage right now your not alone. I know it sounds really depressing and negative but as kelsey said it’s a journey that you can start over about trying to heal yourself. Sending positive vibes to anyone that is in pain and suffering and depressed right now, cause I knows it’s hard but eventually I don’t know when but we will get through it.
Amy G
Amy G 3 aylar önce
@dru Also have AS, and I never had the eye symptoms, but my rheumatologist asks me about it every time I see her. It's very, very common.
PowahRanger
PowahRanger 6 aylar önce
@dru I have AS myself and yes, pain can definitely be in the chest, and certainly the eye. The reason I was even diagnosed at all was because my eye was severely inflamed and If I didnt get the right medication in time i could have had severe damage to my eye. So please do be very careful when you experience pain in one of your eyes, and if a red spot appears please save yourself and ask for prednison eye drips, when you are diagnosed ofcourse.
dru
dru 6 aylar önce
i’m worried I may have AS too, i’ve been to several doctors about really bad hip/tailbone pain flare ups that leave me unable to walk at times but haven’t gotten any answers. During my flare ups i also get chest pain and sometimes eye pain, do you experience any symptoms like that?
elisa
elisa 9 aylar önce
as someone who suffers from chronic migraines this was such a nice video. My pain has always been ignored, yet i’m in pain most days. “it’s just a headache”, but i can’t even move when i have an attack. i wish chronic migraines were more recognised as the disability they are
LookOuch
LookOuch Aylar önce
Search up trigger points for headache pain, I'm not sure if you have chronic headaches because of neurological issues or if you still haven't figured it out 100% but I hope this helps!
Mallory x
Mallory x 3 aylar önce
They're no joke. I had one for so long that was so intense I debated exiting this world. I had a head injury as a toddler n I think that's what started it because Ive had migraines my entire life. I can't function. I had one at work n was stuck bc I couldn't drive. Had to lay in the doctor's exam room for hours til it went away. I'd do anything to never have another migraine
latte
latte 7 aylar önce
Godbless you and may all of us get through this and tough times, we are strong and survivors and whether or not we are strong 🙏🏼❤️❤️❤️❤️❤️
latte
latte 7 aylar önce
Yes!!!
Brittani W
Brittani W 7 aylar önce
Me too..it moved me to tears. It feels like no one sees what we go through until something like this comes along.
Sierra Jeter
Sierra Jeter 9 aylar önce
i was recently diagnosed with Amplified Pain Syndrome after going through 4 rounds of chemotherapy and dealing with Avascular Necrosis for 6 years. the segment where the talked about “mourning yourself” really struck home because, it’s not just a one time occurrence. i am in a continuously cycle of mourning my past, healthy self and i mourn for my future because i’m not sure how old i can get. this video makes me feel seen, thank you for producing this and making me smile about my life today :)
ButeraMelina 🦇
ButeraMelina 🦇 9 aylar önce
It's sad to know that they are in constant pain. Sending much love to all of those who suffer from chronic pain 🖤
Moon Orchid
Moon Orchid 7 aylar önce
@rose ?!?!?! hopefully you have good doctors who listen to you. If not, keep searching until you find one that does and build your pain management plan with them
rose ?!?!?!
rose ?!?!?! 7 aylar önce
@Moon Orchid thank you, i usually feel invalidated.
ButeraMelina 🦇
ButeraMelina 🦇 7 aylar önce
@rose ?!?!?! You're welcome! Judging from your reply, it seems like you have chronic pain so: I hope you're doing alright!
Moon Orchid
Moon Orchid 7 aylar önce
@rose ?!?!?! absolutely. Any type of chronic pain. Often gets invalidated, even if unintentionally, because people who don’t experience it cannot comprehend it. So they relate in the only way they know how… comparing it to their own experiences.
rose ?!?!?!
rose ?!?!?! 7 aylar önce
@Moon Orchid i hope you're including knee chronic pain though. sorry if i misread, i just get invalidated for my type of chronic pain all the time especially as a juvenile.
Justboredhelpme
Justboredhelpme 8 aylar önce
I've been living with a stomach illness all my life. My first GI doctor (male) referred me to a therapist for anxiety. After 4 years of intense psychiatric treatment, the doctors believed me. I had been living in pain for years and I mean I still live in constant nausea. I found a lovely GI doctor (female) who not only diagnosed me after about three test, but also emotionally supported me through an ED and medical trauma. Although the OG doctor did save my life by recommending me for therapy, he also dismissed me and made me feel like just another anxious female. I'm now diagnosed with gastroparesis, gastroesophical reflux disease, functional dysphasia, and generalized abdominal pain. I also have nerve damage in my bladder ( I have little sensation) and other organs due to an infection. Sexism and misdiagnosis of female born people is real. female born people are 4x more likely to have gastro intestinal problems but male born people are 4x more likely to be diagnosed. Female born people are dismissed due to our reproductive systems and emotions and it caused me to live 17 years without proper treatment. Listen to disabled and chronically ill people
Lindsey Grace
Lindsey Grace 8 aylar önce
I would love to see this expanded into just invisible illnesses in general, and dive into the spoon theory and others' disbelief as well! I know as someone with an invisible disability I think it would be really helpful to the community.
Anna V.
Anna V. 8 aylar önce
yes! i have crohn’s disease and i would love exposure on it. it’s such a taboo illness that people who have it don’t often talk about because it’s slightly uncomfortable. i just want to be able to share with people why i poop 7 times a day 😭😭
Kay
Kay 9 aylar önce
I suffer from severe, treatment-resistant depression and this resonated so strongly with me, as well. Hearing you ask about mourning my past self struck such a heavy chord with me; it’s something i’ve been bringing up in therapy so much and it’s so so hard to navigate. Depression is an invisible illness, too, and i also struggle with people understanding what i’m going through and how it affects my abilities. I’ve been having a difficult time because I don’t want to have to unveil my disability to get to people to understand what i’m going through, too. It’s a valid reason, but it’s also very personal and i don‘t like having to share it with so many people, especially in school or work settings. I’ve been burned by it before at a past job and I’m scared it’ll happen again.
Giulia Fontana
Giulia Fontana 8 aylar önce
@Kay I'm so sorry. I have depression too and it just sucks. One of the things I hate the most is not being able to talk about it with anybody because they wouldn't understand. Hope things get better for you
Kay
Kay 8 aylar önce
@blue fired 💕
blue fired
blue fired 8 aylar önce
Wish you all the best💖
Ahhh Youtube
Ahhh Youtube 9 aylar önce
I think we want to love ourselves, but it’s strange how we’d also rather rot into the soil as a nutrient than navigate this mortal coil and human skin. It’s not easy trying to be open with everyone about the part of us that makes us feel broken wether it’s hydraulically squeezing depression, brain melting anxiety, or something else thats really special. Talking to people about those lowest moments might get them out of your head temporarily but it’s like a mental scar and somehow doing other things glances at that scar and then you fixate, tunnel, or bury yourself in various forms of negativity. I thought i was different when i was young but i didn’t realize i was living with physical disabilities and that the mental ones were just about to join in. The slow breaking of ones body and psyche in my eyes would be torture, so ask me how i’m doing i’ll say existing is torture. I don’t wanna feel like a net negative to society but i don’t see where i bring value to anything besides just another perspective or statistic. Hopefully i find something that i feel brings value to not just others but myself, the darkness cannot be contained we can only try to shed light on it.
Godzilla
Godzilla 9 aylar önce
I really appreciate that you've gone into chronic pain with this one. It's hard to get people to believe you're really hurting all day every day without any visible evidence. Hopefully this helps people to better understand.
Gourami
Gourami 9 aylar önce
“Proving I’m in pain” is an issue with my family. I can tell my sister that I suffer from migraines and that I messed up my knee when I was in high school and it instantly becomes “tired from what?” “You’re just lazy” and I felt like I shouldn’t vocalize any kind of pain or illness to anyone EVER. It gives me such anxiety to have to call out sick, I feel bad for leaving g them short staffed and I see myself as a diva :/
Mallory x
Mallory x 3 aylar önce
@Abbs if taking a Tylenol helped that would be amazing. People who say "it's just a headache" clearly never had a migraine.
🦔 𝐿𝒾𝓈𝒶 𝐸𝓃𝑔𝓁𝑒𝓇𝓉
🦔 𝐿𝒾𝓈𝒶 𝐸𝓃𝑔𝓁𝑒𝓇𝓉 4 aylar önce
I’m assuming most of you have tried Botox for migraines. If you haven’t, do it!! I went thru everything and it was pretty much constant. I’m on Botox every 3 months and I have had maybe 3 since after 3+ years. Don’t give up, keep looking and fighting. I wish that was the only source of pain for me. But onward!
🦔 𝐿𝒾𝓈𝒶 𝐸𝓃𝑔𝓁𝑒𝓇𝓉
🦔 𝐿𝒾𝓈𝒶 𝐸𝓃𝑔𝓁𝑒𝓇𝓉 4 aylar önce
💯
Sam-I-Am
Sam-I-Am 6 aylar önce
I hardly ever cry or complain, so when I sob which hurts to do so, and can't even scream because of the amount of pain migraines give me and just looking incredibly sick from the nausea, dizziness, and lightheadedness that comes with it my Mom couldn't ignore it. Migraines are the type of pain you can only begin to understand how they debilitating are when you get them. I mean who wants to lock themselves in a dark room with no sound or light for as long as it takes to go away? If I wanted attention, wanted sympathy, or wanted an excuse to get out of things I would have chosen something more believable.. Not migraines.
Ra
Ra 7 aylar önce
Right?? When I was in high school my coach, bully, and classmate used to treat me like I was making it up/being dramatic… it was very frustrating because I was already in so much pain that I’d feel desperate and I’m already stressed because I know I have responsibilities I need to pause….I didn’t need someone bagging on me for not being available on top of all of that. Also, to speak on migraines, it just frustrated me so much how they’d think migraines are just headaches… like I WISH it was just a head ache…. It’s extreme dizziness, nausea, and sensitivity for all your senses (light, sound, motion, touch, smell) all on top of a really painful headache. it’s so persistent… my coach used to treat me like I should be pushing through…. There isn’t pushing through a migraine, it just gets worse the more you “push through”. And what sucks is sometimes it won’t go away…. I had one that lasted a week. Migraines are so debilitating.
Cam cam
Cam cam 9 aylar önce
Omg zach’s explanation of how docs don’t listen, I understand that. I’ve got fibromyalgia, which obviously isn’t as severe as these chronic pain problems but it’s still a chronic pain thing and whenever I tell a new doctor about it, they’re like ‘oh you’re too young , you’re just over reacting’ even tho I’ve been diagnosed by a rheumatologist and sometimes just have to explain my pain to the new docs and even when I mention fibromyalgia, they still say I’m too young- I’ve been diagnosed since I was 14 and I’m now 22 but yeah, they always say I sound 50 and don’t believe me
Darby Brown
Darby Brown 9 aylar önce
As someone with EDS, my first mobility device came in today (a cane) and felt so alone. This videos helps to reassure
Elizabeth Brown
Elizabeth Brown Aylar önce
❤️
Annika Norris
Annika Norris 2 aylar önce
Hey, have you heard of Jessica Kellgren-Fozard? She makes a lot of types of videos, but some of it is about her EDS and other conditions. There's also Footless Jo who is just starting to use a wheelchair and has been making content about getting used to the idea of having a mobility device. You're not alone out there. I'm not disabled so I don't know what you're going through, but I'm sending love and support from afar. Congrats on your cane! I hope it has made life a little easier for you these past 7 months or so!
LuckyCat
LuckyCat 9 aylar önce
I remember before my diagnosis, a friend of mine at the time asked me if "I wanted to be sick" No, I don't, but I feel like a fucking crazy person when my doctors keep telling me my pain is just in my head or that I'm overexaggerating. Getting a diagnosis meant that my pain was real and valid. It also gave me a better idea on how to attack it and face it everyday.
Jodi Jacob
Jodi Jacob 9 aylar önce
I would love to have been a part of this documentary. The pain literally never ends and never will. It actually changes your physical appearance. I used to never look my age and now I look older than I am. My prayers to all who suffer from chronic pain.
Hailey -Senpai
Hailey -Senpai 9 aylar önce
Man I couldn't imagine going through such intense and unbearable pain for such a long period of time, while remaining as positive and chipper as the guests who appeared on the interview- that takes a immense amount of a different kind of strength When Anthony asked about pain becoming apart of identity, I thought back to my grandma who was in a really bad accident when I was younger, and her pain kind of consumed her and turned her into an irritable and angry person. Although she passed away two years ago, I think that she's finally free from the pain and able to be back to the person she was beforehand.
Isaac Reece
Isaac Reece 8 aylar önce
@Chaotic Angelic I'm sorry to hear you have to go through that, what I usually do is lean on God and taking it day by day (as cheesy/corny as it sounds) I pray it works out for you. Lucky I got out of the hospital around 4 weeks ago and I hope nothing but the best for you. I'm still struggling myself with my stage 4 crohn's, but I know we can get though this together with willpower and determination.
Mak Mov
Mak Mov 8 aylar önce
@Rebekah omg I’m so sorry you need to deal with that. I’m only in highschool and I need to leave classes to a hallway or to a small room where I can just go and shake because I physically cannot stop. I sometimes can’t move or stand on my own to feet.
Chaotic Angelic
Chaotic Angelic 8 aylar önce
@Isaac Reece I'm 15 and just developed chronic pain (fibromyalgia) recently. Any tips on making it through highschool like this? (I have learning disabilities too so that's definitely another factor of difficulty tho lol)
Chaotic Angelic
Chaotic Angelic 8 aylar önce
@Mak Mov same here, except mine started last year. You're not alone, I relate on that entire statement
Ahhh Youtube
Ahhh Youtube 9 aylar önce
@Rebekah working as a dishwasher currently, breathing hard and holding back tears while trying not to show weakness is very difficult. Parents and professionals have disregarded my pain as “growing pains” or “that’s normal” far too many times, to the point where i almost ran upstairs to show my dad my partially dislocated thumb, sh*t’s terrifying. Housing is damn near inaccessible in the market i’m in. I’m likely going to be in a wheelchair before global warming really starts getting f*cked. I work really hard, to have my hours cut because of covid and then get screamed at for not working enough and still living with my parents (i know so many people are) my options are, try to live in a warehouse with my friend, try to find roommates, live in a car. I saw the view from halfway down, before i knew i was disabled, it’s very easy to come back from a near death experience appreciating your life more, and i did. For a while, it’s hard to not be depressed and anxious when you’re constantly in pain. I have a hyper metabolism too so i usually don’t eat enough, and if i actually am feeding myself well then my bank acc is crying and i’m not even paying rent rn. I got used to the 1 step forward 2 steps backward in middleschool but the trauma i’ve experienced in the last 5-6 years has been making it so it’s more akin to 1 1/2 wobbly steps forward and a sweeping kick to both ankles. Life generally has enough pain to begin with, add other chronic pain and you’ve got a bunch of people who are on the verge of breaking, who almost never get the support they need in the times they need it. My friend has been helping me close and some of the waitresses put things away for me, seemingly small actions but they mean the absolute world to me.
Tophat Teapot
Tophat Teapot 9 aylar önce
I'm so glad to see these, as a person with chronic pelvic pain for 10 years its so hard to deal with because there is nothing to show that I'm suffering with pain all the time and not to judge someone straight away. There are a lot of layers with pain to which I am still learning and processing. Everyday things become that much harder, something so simple can be so exhausting, becoming unsure about many daily events and rediscovering yourself throughout. The hardest I find is keeping myself motivated and not to give up and give in.
Sandi Wood
Sandi Wood 9 aylar önce
Zach is the greatest and I just love how open and honest he is whenever he speaks about his life - not just his illness or his pain but just life in general. He has no problem sharing his experiences no matter how tough. 🥰
Relesy
Relesy 8 aylar önce
It’s so nice to see someone else with TMJ, makes me feel that I’m not alone.
Horror Fae
Horror Fae 9 aylar önce
as a chronic pain sufferer this video really spoke to me and i feel that i can send this video to others to better convey what i'm going through. it's so difficult to effectively convey to people around you that the invisible pain you experience is real and depletes you of energy and has a mental toll on you. many able bodied people often forget that someone might be going through immense pain even when they look physically able and well
Janine
Janine 9 aylar önce
“You don’t look sick.” I probably heard this a million times now. i hope you can do more of this people with invisible diseases. As someone who has one, I believe the reason why these are happening is because of the lack of information and awareness. Thank you Anthony for doing what you’re doing.
Ahhh Youtube
Ahhh Youtube 9 aylar önce
@Jenny p That’s a classic one, wish they got more creative it could be more fun
Ahhh Youtube
Ahhh Youtube 9 aylar önce
It’s how i open that conversation at this point i’ve had to open up to so many people saying hey, i don’t look sick do i, is the perfect way to start explaining how some of us are just much better at hiding our ailments and illnesses. We want to be seen we want be heard but it’s hard to explain these issues without going into depth about any one of them. I’d rather have a tattoo that says Disabled than explain to 50 people the various ways i’m impaired
Jenny p
Jenny p 9 aylar önce
"OH but you are so young" that is my most common one, like yeah I know but i'm still sick..
Ahhh Youtube
Ahhh Youtube 9 aylar önce
It’s great when you personally know what wrong and that you need a diagnosis and your doctor says that’s not hereditary. I suffer from ehlers danlos syndrome, a disorder that mainly effects collagen and there’s not much more to that description as there are more than 10 types all effecting various different systems in the body. My father never took my mom seriously and unsurprisingly he doesn’t believe it because he never saw a diagnosis.. so now it’s just sorta up to me to find someone Actually willing to do genetic testing just so i can be labeled Disabled..
John Shoemaker
John Shoemaker 9 aylar önce
Agreed. Would love to have had someone with fibromyalgia and chronic fatigue on.
LillDaChill
LillDaChill 9 aylar önce
Zach is one of my absolute favourite people ❤️ Thank you for speaking about this to all of you!
Isidora Méndez
Isidora Méndez 8 aylar önce
As I’m currently in a pretty bad chronic pain flare up, I have to admit I cried through this whole video. Chronic pain makes me feel so alone, and seeing someone vocalize what I’m going through helps so much.
Chey
Chey 9 aylar önce
I love this so much as someone with chronic pain, and I would LOVE to see a video about fibromyalgia as it's all mental. Having fibro is a Rollercoaster because there isn't a physical reason why you should even have pain, it's a neuropathic issue where your nerves either send the wrong signals or enhance the signal so a simple sensation is unbearable.
wini tommo
wini tommo 9 aylar önce
wow this is insane! I would love if lady gaga or corpse was on this episode talking about their fibromyalgia. these people who suffer from chronic pain you’re legends. very emotional episode!
Rebecca Lambert
Rebecca Lambert 9 aylar önce
Dang, even just a few minutes in this is hitting hard. . . Especially hearing it called "the suicide disease", as that's also a moniker sometimes used for CRPS, which my sister has and I may have. I do have my own chronic pain issues, but wow. . .
Emma Wilkins
Emma Wilkins 9 aylar önce
I've had chronic pain since I was 7 - I'm now 28 and this was so wonderful to see. To feel recognised is such an important gift. Thank you to everyone involved in this for giving that to me.
moonlit pond
moonlit pond 9 aylar önce
I’d love to see you interview people with ME/CFS. It’s something I’ve suffered with since aged 13 and got diagnosed with at age 18/19. We often struggle to be seen as having a ‘real condition’, we suffer from fatigue 24/7, chronic pain and mental impairment due to the fatigue and pain. It can be triggered from trauma, accidents, genetics or just have no specific cause. It really is helpful seeing these videos helping validate that there is SOMETHING WRONG and we’re not just being dramatic.
Julia Ossowska
Julia Ossowska 9 aylar önce
Omg… I’m so grateful for this video… I suffer from chronic pain for almost 6 years and it still feels humiliating to admit and say it out loud that I’m consistently in a vulnerable position… and after so many years there are only few people who know about my pain and even fewer believe me…
Sapphire Bluez
Sapphire Bluez 9 aylar önce
From someone who suffers a lot with chronic pain, it’s so relieving to see others finally talk about it. I’m very young and I’ve been suffering with it since I was 8 and now I’m turning 18 very soon. It’s nice to know that other people know what it’s like and that others struggle the same way . Thank you for bringing light to this and helping others understand what we go through
Hannah Hester
Hannah Hester 9 aylar önce
Happy almost birthday.
Molly Bennett
Molly Bennett 9 aylar önce
As a fellow long time chronic pain haver (I don’t remember a time I didn’t have it, and I’m only 18 ) I agree with you. It’s nice to see people talking about it. Young people to boot.
Olle Aronsson
Olle Aronsson 9 aylar önce
Similar situation here, started when I was 15, going on 26 now and its better but not enough to function daily sadly.
pnjsmom26
pnjsmom26 9 aylar önce
I feel for you. My oldest child has had chronic pain since they were around 5-6 yrs old and they are 21 now. They have chronic migraines and at least one other undiagnosed issue. No one wants to believe someone so young has so much pain making it difficult to get them a correct diagnosis.
clara
clara 9 aylar önce
Holy shit, same here. Been dealing with this shit since i was twelve, going on twenty now and still looking for answers
Elicia
Elicia 9 aylar önce
My jaw has been broken since july 22nd 2020. and the comment "i give amazing head despite what has been thrown at me" I FEEL YOU GIRL
Crystal B
Crystal B 9 aylar önce
Holy wow! I feel heard for the first time in my life! I have lived for 17 years with chronic pain from multiple ailments- rheumatoid arthritis, psoriatic arthritis and now this year diagnosed with limbic encephalitis and no one has ever done a video as amazing as this one! You touched every aspect with honesty and understanding and no judgement! Thank you!!! I’m bawling because no one ever understands me!
sage saturn
sage saturn 9 aylar önce
thank u for this !!! i was just having a conversation with my bf bc i LOVE concerts and we want to go to a multi-day festival together one day, but he was getting a little frustrated when i brought up that i can't do a camping festival (unless we could afford a sprinter or RV rental or "glamping" setups some fests have) due to my scoliosis. i'm always a little achy, and no matter how much i love an artist and have lots of fun, i still end up in a lot of pain after a few hours standing in a concert pit. it was really frustrating for me to try to have to explain to him that being at a festival all day and then sleeping on the ground at night would result in me spending the entire festival in pain, slightly disassociated, and only able to think about when the next time i could sit down would be instead of focusing on the music and experience. it's like living in an entirely different world
Sheep
Sheep 4 aylar önce
This video helped me a lot. It’s reassuring to hear from people experiencing the same things as me. I suffer from a chronic headache, I’ve had it for almost a year and it has never gone away. Not once. It amplified my depression and anxiety and I’ve had to go both to mental health care facility’s and physical health care facility’s (including the hospital 3-4 times now ) . if anyone is struggling with the same thing as me you should know that you are not a burden to your loved ones, you are so so strong, and you can still live a fulfilling life
FlyntofRWBY
FlyntofRWBY 9 aylar önce
Thank you for making this episode, Anthony! My mom suffers from so many chronic pains, and illnesses that she's practically a case study. Just a few things to name off that she has been diagnosed with are that she has Lyme Disease (assumed she got it from an infected cow's milk when she was a child in Guatemala), bone spurs in her ankles, arthritis in her hips, bulging discs in her back, trigeminal neuralgia, and fibromyalgia. She's diagnosed with a new chronic pain almost every year. So many doctors have told her "you don't look sick" and it pisses my father and I off when they say that. My mom started to become depressed because so many doctors were telling her nothing was wrong with her. Finally a doctor started giving her proper diagnosis after a decade of searching for doctors that would listen. Even with all these pains, she still powers through it. She tries to exercise and cleans her house while my dad works. She doesn't work because my father and I don't want her hurting herself for a company that won't give a shit about her.
May
May 9 aylar önce
My old coworker has Lyme’s disease and it’s definitely no joke. She has so many additional issues because of that and I always listened to her talk about her chronic pain and all her conditions and felt so terrible for her. It took her years and years to get diagnosed because no one had any idea what was wrong with her. Much love to your mom, she sounds like a strong woman❤️
Dani
Dani 9 aylar önce
My mom also struggles with chronic pain so badly that she was in a wheelchair by 25, and there is no cure, medications are also not effective/too strong for her conditions. Surgery doesn't resolve it either. I believe one of them is called "disc disease" and she has a lot of nerve pain, I don't know the details bc she rarely talks about it. She doesn't complain about it either though, she's just always exhausted for over 30 years now.
Petar
Petar 9 aylar önce
I'm sorry your mother has to feel such pain, thinking about something like that happening to my mother breaks my heart. Wish you and your mom good luck ❤
Michael brd_exe
Michael brd_exe 9 aylar önce
Your mom is amazing, honestly a really inspirational person. Also I just wanna say I love your videos!
John Shoemaker
John Shoemaker 9 aylar önce
I’ve heard the you don’t look sick so many times now. I tell them you don’t see me when I’m writhing around in my bed just wanting to scream and cry because I’m hurting so bad I don’t know what to do. If you saw me in those moments then you would understand. Sadly, doctors just do not have an understanding of how bad pain is, especially pain doctors.
daineishabel ortiz
daineishabel ortiz 9 aylar önce
Thank you so much for this video, I’m a chronic pain sufferer and it’s a breath of fresh air to see that you took time to try and understand this community. Thank you!
Finn's Mom
Finn's Mom 9 aylar önce
Thank you. Still dealing with self esteem, depression and anxiety issues twenty years on. The loss of my career was probably the toughest long term issue for me. Asking for help is still a struggle.
flowrgurln
flowrgurln 9 aylar önce
i would love you to do an interview on just fibromyalgia. it's such a crazy and hard to diagnose chronic illness. it def needs to be talked about more and i would love others to bring more awareness to it.
Matt Rosa
Matt Rosa 8 aylar önce
I was diagnosed with something, and I just remembered that; I actually cried when I got an official diagnosis of it. Lol this was years ago, and the tears came from the acknowledgement that something wasn't normal, and that I was having valid feelings and wasn't resolving any issue. It wasn't something that was going to go away naturally. So I can kind of relate to the diagnosis portion of this. Also, of the nerve pain too, kind of; I'm currently taking Gabapentin for something similar to that and my mom's on Lyrica for her actual nerve pain. It's really scary to see someone go through that kind of pain, cause it's unnoticeable and caused from something 'invisible'.
ItsFeliciaTime
ItsFeliciaTime 9 aylar önce
My father has a chronic headache. He always discribes it as a tight rope being around his head. He has days where he can barely get out of bed because of the pain. Thank you Anthony for spreading awareness. Not many people realize chronic pain is actually a thing.
Mateo Fierro
Mateo Fierro 8 aylar önce
@Teddie Blue same, it’s something that my dad and I both struggle with. One one hand, I do feel lucky to have someone who understands how painful it is who could take me home from school when they got bad or give me the proper medicine, but it really is so overwhelming to go through.
John Mitchell
John Mitchell 9 aylar önce
Especially the doctors
mrahzzz
mrahzzz 9 aylar önce
@Jessica Å Taking on to your comment to say, in the US, CBD is legal federally, but has certain regulatory standards it has to meet (eg, it can't be advertised as a medical solution), while THC is not federally legal. So CBD can be pretty easy to legally get in the US To your comment, though, I wanted to say: I think just because some management methods don't work for everyone doesn't mean people shouldn't bring it up. I know it's tiring to hear people make medical recommendations when things might not work for you, but I feel the opposite of what you said is more valuable: just because it _doesn't_ work for you, doesn't mean that it won't work for anyone else. It's beneficial to have disclaimers (" ___ might not work for everyone"), but these anecdotes can still be valuable for possibly helping others. Noobest Girl was just talking about _her_ experience.
Jessica Å
Jessica Å 9 aylar önce
@The Noobest Girl CBD isn't available everywhere. It's literally illegal where I am. Also, I get that it works for you, but it doesn't for everyone.
Apollo
Apollo 9 aylar önce
@The Noobest Girl what......
Ghostteeth
Ghostteeth 7 aylar önce
As a disabled person who just recently started walking with a cane and literally started my journey of finding out I have chronic pain and illness because of Zach’s little series about it on the try guys channel a while ago, this video made me really happy, it’s incredibly validating hearing other peoples experiences with similar issues but who are much further in their journey of self discovery and acceptance than I am yet, it really makes me want to stay strong in the hopes that things will eventually get at least somewhat better
A-MSTNG
A-MSTNG 9 aylar önce
I lived through the worst of ankylosing spondylitis. It took me 3 years to get diagnosed. Those years were the worst of my life. I'm on medication now and feel much better. I send prayers to those with this struggle. 💚
A-MSTNG
A-MSTNG 9 aylar önce
@Elektro LUDIKITS The knee swelling is quite difficult to get rid of but exercising also helps me out. Best of luck bro 💪
Elektro LUDIKITS
Elektro LUDIKITS 9 aylar önce
I suffer from from Bechterew syndrome too, and meds help me going through my daily life, but I always have a background pain. Sometimes, inflamatory flare-ups are very strong and medications are of no real help. I wish you the best and to suffer the least possible.
Emma Pearl
Emma Pearl 9 aylar önce
I was just diagnosed with PCOS, Fibromyalgia, and Chronic Migraines. Thank you so much for your openness and willingness to learn and create a safe space for chronic pain sufferers to share their experiences. This was so validating. Especially the portion about "proving your pain." It is so exhausting to feel like you have to prove yourself in order to be understood and have access to the treatment and doctors you need. Kelsey and Zach's videos have definitely helped me on my journey and I'm so glad I got to hear more about their's.
rachel emer
rachel emer 9 aylar önce
I dont know if youve already done this, but I would LOVE to see an episode interviewing caretakers, children of dependent parents, parents of special needs children, as a home health nurse I got to see just how much goes into caring for others 24/7 as a family member unlike me, who I relieved that burden for only about 7 hrs out of a 24 hr day.
Monica Mesecar
Monica Mesecar 9 aylar önce
Update: His shout out to listen to disabled people…yes!! Wow, as a disabled person myself, I just want to thank Zach for giving me the verbiage of “your body is spending energy in ways that you can’t see, and there’s just nothing left for up here”. Really resonated with me. There are many days where I struggle to “make myself” do even the most basic tasks because I’m exhausted.
BlinkinFirefly
BlinkinFirefly 9 aylar önce
@J S *hugs* I know how this feels so much. Some days, we only have like three spoons, and that's it. On days where I have so few spoons, I try to remind myself to be gentle to myself, and be proud of the small accomplishments. Even getting out of bed can be an accomplishment to us chronic pain sufferers
J S
J S 9 aylar önce
I struggle so much with this too. Today I are breakfast, made 2 of 3 needed calls, and took my pills. Might not seem like much to others, but this was huge for me.
BlinkinFirefly
BlinkinFirefly 9 aylar önce
I know those feels all too well and my heart goes out to you and everyone who deals with that
TheChickenSandwich
TheChickenSandwich 8 aylar önce
I have chronic pain and I’m really young for someone with my issues. I’m really glad that you made this video and how listening to disabled people was mentioned because it’s honestly so important
Amanda
Amanda 8 aylar önce
I relate by having chronic illness. I’m told “you never feel well” by my mother and it’s frustrating she doesn’t understand after 11 years. When I talk about the pain that’s when people should worry. I never mention how much pain I’m in due to lack of understanding by friends/family.
KM
KM 9 aylar önce
thank you for talking about this! it’s so nice to know that there are other people like this
Murderous_Intentions
Murderous_Intentions 9 aylar önce
Thanks for the awareness, Anthony! As someone with trigeminal neuralgia, fibromyalgia, and chronic migraines it’s great for the word to be spread!
Lauren Smith
Lauren Smith 9 aylar önce
Zach is always such a delight and I so appreciate him sharing so much of his stories with others
Emi
Emi 9 aylar önce
“Yes daddy” was probably my favorite line from Zach ever
Bernadette Hubbart
Bernadette Hubbart 9 aylar önce
You’ve now made three episodes that really resonate thank you 🤗 ADHD, aphantasia and chronic pain. All your videos are super interesting too - the ones on people with terminal illnesses I’ve watched many times over. I’ve been waiting for this one - so glad to see it being acknowledged. Sometimes I feel there is a barrier between me and people who haven’t had to get up and carry on with life as if nothing is wrong. Because you look fine. It’s just your bad luck that some of your nerves have turned into pain highways. I do have good days. Even good years. But I still weigh up every action on the scales of will this cause a flare up and cycle of pain and inflammation and lack of sleep that could last weeks…months…years. And on some level I always battle fatigue. By now the friends I have are mostly like me, the people with invisible problems 🤷‍♀️ it’s too much to expect others to really understand it. It’s hard to empathise with what you can’t see and have never felt.
amr3
amr3 8 aylar önce
I’m 18 years old and struggling with neck pain and stiffness. It’s not just any pain, everyday when i wake up my neck is so stiff and it hurts so much that i can barely stand up and do my daily tasks. I can not work out, do sports, or even watch a movie because my neck is malfunctioning. No one knows what this is😔😔
HellCat
HellCat 9 aylar önce
As someone who’s struggles with chronic pain and has a hidden disability, I could only imagine how much more I could do without it.
Mason Treviño
Mason Treviño 9 aylar önce
Thank you for making this video Anthony, I always feel invisible with my disability. I have CFS/ME and it's really hard. I had a huge mourning period of my old self when coming to terms with all of the things I can't do anymore with my weak muscles and fatigue. I have to use a cane sometimes to walk. I was in so much pain today that I was crying. But seeing other disabled people talk about their chronic pain means a lot to me and makes me feel less alone.
Olivia Millman
Olivia Millman 9 aylar önce
This is such an amazing video, I especially resonate with Kelsey’s story of the chronic pain coming from a surgery complication. ❤️
The Awesome Cabbage
The Awesome Cabbage 6 aylar önce
Really enjoyed this episode! Wish you'd also talked to someone with fibromyalgia but this was an incredibly important topic to cover! Thank you !
Jet Leclaire
Jet Leclaire 9 aylar önce
OMG KELSEY AND ZACH! 🖤 They've both made me not feel so alone as someone with chronic pain.
Erin Williams
Erin Williams 9 aylar önce
Thank you for bringing attention to this, I've suffered from chronic pain my entire adult life, and most people don't understand how debilitating it is!
LilBit0379
LilBit0379 9 aylar önce
Zach saying "I'm the strongest person I know" honestly hit my heart and soul. I have Ehlers-Danlos Syndrome, among many other things aka, I got hella chronic pain. And I've said the same thing about myself for years. Chronic pain suffers are SO fucking strong we have to be or else our situation would be even more crippling than it already is and I just wanna say, good job to all of us, proud of u guys
coolperson320
coolperson320 6 aylar önce
I definitely have a fourm of it and still waiting to have an "official" diagnosis Its a fucked condition and very diverse! While I don't dislocate any of my joints, I do experance the weak joints and.... very bad muscle mass (anyone else have this?) But yep... I'm always experiencing some type of pain... I have really bad issues with my knee a few years back and now looking at it, it was the joint pain it felt like I had no cartilage and it was scraping against bone.
Chaotic Angelic
Chaotic Angelic 8 aylar önce
Aldranza M
Aldranza M 9 aylar önce
Also hypermobile (no EDS but still colagen deficient)- it sucks but we are so much more!!!! Proud of y'all!
gabrielle nichole
gabrielle nichole 9 aylar önce
I have EDS hypermobility and a bunch of spinal issues…you’re not alone!
Evie 0h
Evie 0h 5 aylar önce
One thing I’ve been curious to ask, especially for the online episodes through the screens, do the guests ever want to or get to have a chat with each other, is that something you’ve ever organized, or do you know if your guests have contacted each other on their own to have a chat about these interviews?
Rebekah N
Rebekah N 9 aylar önce
Thank you so much for this video. I hurt my spine when I was about 12. Then I started getting migraines at 14 and developed symptoms that would later be diagnosed as Fibromyalgia. The most difficult, yet important thing for me was acceptance. Accepting that this is the "new normal". Sending love to all the Spoonies out there.
Party Poison
Party Poison 9 aylar önce
I've been struggling with CFS (ME) and vasovagal syncope for my whole life, so I'm happy you arranged this interview.
Dakota O
Dakota O 9 aylar önce
As someone with chronic pain from ehlers danlos syndrome, it's amazing to see someone interviewing people who suffer because alot of people don't believe it can be as bad as it is.
Mae Lily
Mae Lily 9 aylar önce
I have something very similar to what Kelsey has. It’s called CRPS (complex regional pain syndrome) and it’s also considered the evil twin sister of fibromyalgia. This episode makes me feel so validated and seen.. thank you so much. I had a hip surgery in 2019 to correct a genetic bone deformation and I had a severe nerve injury caused by the surgeon, just like Kelsey. It’s devastating. Absolutely devastating. I can’t feel my skin below my left hip and I exist with severe pain. The only reason I have a life is because I found a doctor who believed me and diagnosed me and I have the meds I need after years of trial and error. Just, thank you for this episode, Anthony, seriously. ❤️
LittleMissShank
LittleMissShank 9 aylar önce
As someone with suspected endometriosis this was a really interesting video to watch. It feels very reassuring to hear people talk about it and spread awareness for it.
Miss Overlord
Miss Overlord 7 aylar önce
I had given up on trying to find a diagnosis till I watched this. So thank you. I’m determined to find someone that can help again.
Marcella R
Marcella R 9 aylar önce
THANK YOU! Listening to others talk about chronic pain and spreading awareness is so affirming for me as a person with chronic pain.
Faedra Emberhart
Faedra Emberhart 9 aylar önce
As someone with an invisible illness/choronic pain it makes me so happy to see someone make a video about this. Have been dealing with fibromyalgia since about middle school and im 24 now and if it wasnt for practicallly yelling at doctors to take me seriously for years and forcing them to refer me to specialists I never would have got diagnosed and likely wouldnt be here today. I kinda wish they talked about the stigma of certain pain medication and how its necessary for some of us who dont respond to anything else yet were getting our meds lowered if not stopped entirely even though were using them responsibly. Would be cool to hear from people with fibro and eds if you ever make another video on this topic!
BlinkinFirefly
BlinkinFirefly 9 aylar önce
@Simone M That happened to me too. I was told it's just anxiety or depression. And they put my on anti-depressants. The pain did not go away. And because I moved so much I always had a new doctor who would just wind up telling me the same thing and it took so long for me to get diagnosed with PMDD and fibromyalgia. Still need to get checked for EDS
LilBit0379
LilBit0379 9 aylar önce
SEEING SOMEONE MENTION EDS JUST MADE ME SO HAPPY HELLO FELLOW ZEBRAS
Cat
Cat 9 aylar önce
endo and hyper mobility, i would love to see him do another video with these types of diseases
Belladonna Bloom
Belladonna Bloom 9 aylar önce
I’m 23 and I’ve been dealing Fibromyalgia, Chronic Fatigue and EDS since I was 9. I don’t actually recall ever being “normal” but the symptoms really started to worsen in my youth and early teen years. It seems to continue to get worse with age. Epilepsy decided to pay me a visit at 18 so that doesn’t help. People never take me seriously because I “don’t look sick” or I’m “too young to have these issues.” They’ll never understand what people with chronic pain go through but that’s alright because the people who matter the most in my life know what’s up and they don’t judge me for having worse days than others, for the amount of medication I have to take or for not being able to have a normal job. Those are the people I’m grateful. I know it’s hard but there’s someone out there who really does care and really does understand. Those are the people worth being here for. If you’re reading this and you can relate, your pain isn’t invisible to everyone.
Lou Wheeze
Lou Wheeze 9 aylar önce
I relate to this so deeply. I also suffer from fibro and am 24, I dealt with it some more on and off since I was very young but threw my back out a week before I turned 18 and it’s been nonstop pain since then, I was lucky enough to get a doctor at urgent care to diagnose me when I finally could afford to be seen about it when I was 20 so I didn’t have to fight so hard for my diagnosis but I do have to fight to stay on meds that kind of work bc of doctors along the line not taking me seriously. Also I would like the topic of employment to be touched on because I have yet to have a job not hold my pain against me and suggest that I’m putting on a show to get out of doing shit which of course makes it worse because negative emotions can affect flare ups. I need to stop thinking about this and getting myself worked up bc it is hurting me significantly honestly.
PennyLane
PennyLane 9 aylar önce
There have been a lot of episodes I've really enjoyed, but thank you for making this one. Truly, thank you.
nickinack20
nickinack20 9 aylar önce
Thank you for making this video. I was in 2 car accidents within a short period of time, and 1 accident was on the highway. I’ve had bad neck, back, and shoulder issues since. I haven’t been normal in 13 years and I think the worst part is that I seem completely fine on the outside. I literally have to think about everything I do and what will increase the pain. It’s so great to see others talk about it and just know that I’m not alone.
Slipdripdrop
Slipdripdrop 5 aylar önce
Please never stop this series I find myself getting so invested in learning about the things you talk about. And it helps me to better understand others.
Wills W
Wills W 9 aylar önce
Thank you for making this video. I often find myself having to remind people I live with a level 7 pain rating everyday. But because I'm out of bed living my life as best I can, people are surprised by my chronic illness, pain and fatigue. We are MORE than our illness.
Toni Lawrence
Toni Lawrence 9 aylar önce
I almost want to send this to every person who has told me, 'Your pain can't be that bad?' or 'Are you sure your diet, exercise...can't you try MORE to cure yourself?' and say, fuck you. Because chronic pain is literally what it says on the tin, it is constant, chronic pain and it is a pain you cannot describe. Fireworks, hot needles being pierced into your skin, electric shocks...and even now we are called liars, told we look healthy and we can't possibly have so much pain if we are young (I was diagnosed at 21 and told hey, just take ibruprofen because you are too young to be ill). For all my fellow chronic pain sufferers, I hope today is a good day, and there are people out there who will believe you, who will help you, and videos like this one is a step in the right direction for us being seen and heard.
C.H. Carnahan
C.H. Carnahan 9 aylar önce
@jj don't ever think that! Your pain is as real as everyone else's pain. It's horrible that you're experiencing this much pain at the age you are and I'm tummy sorry that's happening to you! When I was your age. My chronic headaches were just beginning. I can't imagine how I would have been in your shoes at that age. All the advice that I could give, or help I could supply, is that you do whatever you can to make yourself relaxed and comfortable, and that there's someone out there that could give you some help and relief that you need. I wish I could say more, but that's all I can give from my current experiences. You're a strong and amazing individual. Always believe in yourself! 💜
Toni Lawrence
Toni Lawrence 9 aylar önce
@Saving Mercedes: Service Dog Duo You got this girl! I was told hey, go and play some football or go for a run, that will and quote, 'cure you'...I actually cried when someone said that to me because I thought, if I could cure myself of this, don't you think I would? I'm so sorry you are having to deal with chronic pain and dislocations, but believe that every day is a good day, even on the ones that feel overwhelmingly bad, and keep that chin up, you here! We're a big and ever growing community of people, and once you see people who understand what pain is, you stop feeling alone.
Toni Lawrence
Toni Lawrence 9 aylar önce
@jj I was 18 when I first started feeling my pain and I felt the exact same way as you, am I just being overdramatic, do I feel pain more than other people and that's why? Have I done this to myself somehow? And the answer is, hell no you haven't done anything, hell no you aren't being overdramatic and your pain is YOUR PAIN, don't ever let someone tell you what you feel! It doesn't matter your age, if you say you are in pain, you are in pain, and of discussion. I've learnt if I have to go in kicking and screaming and demanding like a drama queen, you bet I will do it, because at least then someone will listen to me and see my pain then judge me by my age!
jj
jj 9 aylar önce
EXACTLY!! Every time I go to urgent care or the ER or see any kind of doctor bc of the constant pain in my legs, they always say the same thing “just do the R.I.C.E method and you’ll be fine” or “take ibuprofen” it’s never different. I’ve been dealing with chronic pain since i was 11, in 16 now and it’s been hell. The ONE time i actually got some sort of relief from the ER was when they gave me hydrocodone which is a narcotic, and that helped a lot, it numbed the pain severally and i was able to walk on my whole foot. But since i’m still young they can’t provide me any stronger medication which is so fucking dumb. I’m still taking my other pain and anxiety medication that just got upped and still struggling. Sometimes I still feel like i’m faking it or being overdramatic but it’s hard faking pain.
Saving Mercedes: Service Dog Duo
Saving Mercedes: Service Dog Duo 9 aylar önce
As a 16 year old with chronic pain and severe dislocations, thank you. I’ve been told so many things and have religious trauma from things that I’ve been told. I was told to try yoga, tried yoga, ended up in the ER from the yoga. We deal with this on a daily basis and we shouldn’t have to. Thank you for saying this.🖤
Grant Casperson
Grant Casperson 9 aylar önce
I love this! I’ve done nonprofit work with this sort of issue in relation to brain injury and this type of dialogue is so crucial. Humanizing patients as people is critical.
Laura sq
Laura sq 9 aylar önce
Thank You! I was finally diagnosed with Fibromyalgia 3 years ago, It started when 12 years old and it took 29 years, piles of DRs, many many many tests, so many drugs over counter, under counter, off the street. anyhow, just saying thank you. I love watching you and learning about things i have had questions about. pretty sexy there too.
slideshowgurl
slideshowgurl 9 aylar önce
Thank you for this video! I have Ehlers Danlos Syndrome and Lupus, and the amount of pain I live with every day in every single part of my body is excruciating to deal with at times….
Author Joanna White
Author Joanna White 7 aylar önce
Thank you so much for this video. My mom has experienced chronic pain ever since her back surgery and no doctor will do anything or take her seriously and we can't figure out why. It's been sooo hard so its actually somewhat relieving to know that she isn't the only one to have gone through this. I just hope she can get a diagnosis
Cerulean
Cerulean 9 aylar önce
I love the diversity he puts in his videos and how nice he is
Niix
Niix 9 aylar önce
@get aids it’s free exactly.
get aids it’s free
get aids it’s free 9 aylar önce
@Niix inclusive for the sake of being informative rather than just for a good look
Niix
Niix 9 aylar önce
I like how this channel is "inclusive" but done the right way, y'know?. Like, something like twitter only can dream to be. Or something.
KyBoSlay
KyBoSlay 9 aylar önce
I’ve recently been in so much pain with my teeth and jaw. I’ve dislocated my knee and tore ligaments before, but I swear that my tooth and jaw pain was the worst pain I’ve ever felt. I had to call out of school and basically suffered all night at work since no one could take my shift. It made me suicidal for almost a week. Thankfully, some medicines have helped. I can’t imagine being in so much pain all the time. These people are so strong.
aleesey
aleesey 9 aylar önce
Thank you for this video. I cried as soon as I saw the title. I've lived with health issues and chronic pain since I was born. There were times where the pain was so bad I felt like my body was a prison. That the only way out was dying. One of my biggest conditions is endometriosis stage 4. I was told I was the worst case they had seen and no wonder I was in so much pain. It took me 12 years to get diagnosed for this condition. Everyone always told me it was in my head, that I was fakinv it, that I was lazy. I was relieved when I finally had an answer however I learned their is so much bs with the western medical industry. That doctor who diagnosed me told me I would need constant surgery (every 1-2 years), that I would need a hysterectomy, that pregnancy might be a cure, or that I should put a very harmful injection in my body (Lupron) to put me in medical menopause. All based off myths and would of really made my situation so much worse. I'm grateful I became an educated patient, I discovered Nancy's Nook and other great online communities/resources. They helped educate me and honestly helped save my life. I would not be here today if not for them. After that first surgery, my pain returned a month later with a vengeance. I knew I had to find another way because I could not go on the way I was or headed. Through the endo community I discovered the Endo diet. It's an elimination diet. Go figure most of the western diet makes the pain a lot worse. It helps you figure out what foods your body can tolerate. For me I can't tolerate a lot of foods. I have to eat more basic. But man has it given me my life back. I used to be in severe daily chronic pain. Remember I also have other conditions as well as immune compromised. I used to have no energy, need to sleep 14 hours a day, severe brain fog, severe fatigue, and just a lot of other unpleasant symptoms. After the diet change I discovered so many other ways of healing naturally. Using alkaline water and alkaline foods (basically very clean eating, it's great for inflammation), discovered so many herbs and supplements, movement/exercise, meditation/mindfulness, getting out alone in nature, sun basking, earthing, and the most important just doing what makes you happy. One of the biggest improvements for me was when I discovered the documentary heal on Netflix. There was an unexpected part where they discussed trauma. It really opened my eyes, I started healing and releasing my trauma after seeing that. And guess what so much of my pain went with it. It was like so much was being lifted off of me. The cage my body once was became my freedom. I've learned to heal in so many amazing ways and honestly I am grateful for all the lessons. I know how to deal with many issues now. I also became a reiki practioner. It's funny I am predisposed for RA. I was getting some pretty severe chronic hand pain the kind where you can't move your hands. They're almost useless. Well after I became attuned to reiki, I learned to heal with my hands. My hands no longer hurt and they haven't hurt since 2020! I am so amazed. My life has changed so much for the better. I never thought possible. And yeah I still have some hard days. What helps me is taking this day by day, I have also changed my relationship to pain and how I see it. Pain is a powerful teacher and honestly my health problems force me to be healthy and not complacent lol. I can do so much more now and I'm often amazed at the strength I have cultivated. The last 8 years have been such a wild journey. Hoping all the other chronic pain warriors are staying strong and taking care of their bodies. We have to take extra care to ourselves. But I promise you there is a way through this doesn't have to be your reality forever. We can truly heal in amazing ways I never thought possible until I experienced it myself. I should be dead and I have come back from things I should not of. The craziest thing of all, it's like I don't even have endometriosis anymore. But here I am stronger than ever. The secret is finding what works for you, what does your unique body need to thrive and heal? Healing is not an easy rode, it's not a set path. Healing is messy, it's painful, it's hard, it challenges you, but the work, dedication, and discipline is worth it. You are so much stronger than you know. You've got this and I am so proud of how far you've come. It may not feel like it but you've gotten to this point, you've survived so much. That is so commendable. I just want you to be happy, healthy, and to feel as good as I do. A true healer teaches you how to heal yourself.💥🦋🌱💚💜
Elle Mourant
Elle Mourant 9 aylar önce
Thank you for bringing chronic illness into conversation! It would be really cool if you did interviews with people with intentional diseases. There are so many elements of it that are just different, and some chronic illnesses such as mine (gastroparesis) should really be talked about more.
Bailey Wilborn
Bailey Wilborn 9 aylar önce
Thank you for this! As someone that has incurable chronic pain, this kind of exposure is super important ♡