I spent a day with NARCOLEPTIC PEOPLE (Chronic sleep disorder)

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AnthonyPadilla

8 aylar önce

I spent a day with people with narcolepsy to learn the truth about this highly misunderstood sleep disorder.
⭐️SPONSOR: Click here for 20% off your own custom hair care: cen.yt/functionap
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🧨HUGE thank you to:
▸ JANISE - jansam_678
▸ LAUREN - lowithoutlimits & rainereusables.com
▸ NATE - Shoutout to Anthony, Jason, Randy, and Andrew!

❗️NARCOLEPSY RESOURCES
▸ narcolepsynetwork.org - Narcolepsy Network is a national patient support organization founded in 1986.
▸ rarediseaseday.org - Rare Disease Day raises awareness amongst the public and decision-makers about rare diseases and their impact on patients' lives.
▸ nodss.org.au - NODSS is a support group set up to help people with sleep disorders.

🗯MORE I SPENT A DAY WITH…
▸ SCHIZOPHRENIA - trshow.info/watch/K8mpJuB4RDs/video.html
▸ BORDERLINE PERSONALITY (BPD) - trshow.info/watch/MkY7P5gtGww/video.html
▸ OCD - trshow.info/watch/RsjHaC1q4OA/video.html

🎥Crew
▸ Creator, Director, Writer, etc. - Anthony Padilla
▸ Executive Producer - Alessandra Catanese
▸ Production Coordinator, Co-writer & Research - Elise Felber
▸ Director of Photography/Gaffer - Zach Zeidman
▸ Editor - Mike Criscimagna
▸ Assistant Editor - Patrick Horba

🎵Theme Music Composer - Matt Good AKA The King of Emo
🖼Portrait painted by: Rhianna Robles - zerogattsu

📢BE ON THE SHOW
▸ If you are part of an underrepresented subculture or live a lifestyle you feel is not widely understood and would like to be interviewed by me, email inquiry[at]pressalike.com with your subculture in the title of the email.

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💉Self plug
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YORUMLAR
AnthonyPadilla
AnthonyPadilla 8 aylar önce
come back later this week for *I spent a day with the first COVID VACCINE RECIPIENTS*. -new episode of this series every week so consider 🔴subscribing. -ps: shoutout to everyone who has turned on notifications 🔔 and directly support me in continuing this series.
Oofermanplayz
Oofermanplayz 2 aylar önce
@E_lizabethr ! and he did it
Carolyn Lamb-Miller
Carolyn Lamb-Miller 3 aylar önce
Would love to see an episode on Ehlers Danlos Syndrome. This lifelong painful condition is often misdiagnosed. I was in my 40’s before getting a diagnosis, and my mum was in her 60’s before she was diagnosed. It is an autosomal dominant condition, so you only need one parent with it to pass it on. It is a lot more common than previously thought, and most of us go through many years of searching for answers. I think bringing awareness to this condition could help many many people. EDS is a connective tissue disorder that can affect every part of the body, as the collagen (the glue that holds us together) is faulty.
M L
M L 3 aylar önce
@ AnthonyPadilla you should do one on people with epilepsy too! Also super misunderstood, and has a really wild history (witches, Julius Caesar, “hysteria” etc). I’m An epileptic and there’s ton of people who do not understand it. Would be really cool to see you touch that topic!
Your helper Learning
Your helper Learning 3 aylar önce
Can you do spend a day people with autism
elsdyr gaming
elsdyr gaming 6 aylar önce
omg i love the episode i have narkolepsi too and i wish i could i have been there too cause i would have loved to tell about it too
Poke Prince
Poke Prince 2 gün önce
I had a time in the 3rd grade for months I fell asleep in drum class while we all was playing the drums and everyone had to wake me up at least 3 times a day.. I never touched a drum Since :) Btw I'm currently in the 10th grade
Juan Lopez
Juan Lopez 3 gün önce
For some of us are treatment resistant too
Molly
Molly 5 gün önce
I wish you could've had jinx monsoon on 😭
Bree Risk
Bree Risk 8 gün önce
My brother is narcoleptic and I've had many a phone conversation with him while he was driving to help keep him awake
Olivia Caron
Olivia Caron 8 gün önce
Me and my uncle both have narcolepsy, but he has cataplexy and I don’t. We’ve learned to laugh as a family about it because he can’t hide when something is really funny to him. At holidays he often will fall asleep in his dinner plate after laughing and losing control of his body. He then takes a quick nap in the food. Obviously it’s not actually funny and must be frustrating, but we’ve learned to laugh about it with him and obviously help him out after
Olivia Caron
Olivia Caron 8 gün önce
Funny story, back in high school I was diagnosed with narcolepsy. I was telling one of my school friends about it and she went and told everyone that I had necrophilia. She didn’t do it maliciously, she honestly didn’t know what that meant and was confused. Long story short my school believed her. It’s quite a big difference but a funny mistake
Sseven 07
Sseven 07 9 gün önce
i might actually have narcolepsy
Shayne_HasLanded
Shayne_HasLanded 9 gün önce
The statistic of how many people have a narcolepsy diagnosis makes me shocked that I know someone personally with a diagnosis.
Olivia Davies
Olivia Davies 9 gün önce
I have severe narcolepsy kinda refreshing to see people learning about it :)
hatziri valdes
hatziri valdes 12 gün önce
As someone with narcolepsy, this is the most accurate, informative video i've ever watched. I was diagnosed at 25 and once my dr. explained everything to me, I was like: oh, this makes a lot of sense. I'm not just clumsy, and I don't just get easily distracted, my brain is actually trying to shut me off. I remember being at the jewelry lab (I'm an industrial designer), and all of the sudden the place started smelling like burned hair, so that made me realize something wasn't ok. I had fallen asleep while welding a jewelry piece and I had no idea, so I burned my hair. That wasn't even the moment in which I realized I had to check if everything was okay. Pretty wild things happened later and that made me go see a neurologist. Thank you so much for bringing awareness about this condition and for being so incredibly polite and professional.
apatheliac
apatheliac 12 gün önce
Woah I don't have narcolepsy but I think I experience a very minor form of cataplexy! If I'm laughing a lot I lose strength in my left hand and can't write for shit.
Eli Etrama
Eli Etrama 13 gün önce
"I'm Asian, there's no way I'm giving up my rice" Girl... I relate
Hector Carrasco
Hector Carrasco 13 gün önce
That Asian Girl is So Beautiful!!
Erika Cabrera
Erika Cabrera 17 gün önce
So, I'm crying while I watch this video, cause I feel like them. I have experienced a lot of the things they said. I hope I can get a doctor that can diagnostic me soon🥺😢😔
GangstaMango Dict
GangstaMango Dict 21 gün önce
Just wanted to say how great Anthony’s hair looks.
Mai Kikosan
Mai Kikosan 23 gün önce
i'm asian, i'm not gonna give up on my rice xDDDDDD soooo relatable xDDDD
Larysa McMullan
Larysa McMullan 24 gün önce
I spent years getting sleep studies done and struggling with similar issues. But I did not have narcolepsy. Finally, I was diagnosed with hyper somnolence and I can say being diagnosed changes my life.
Diana Rose
Diana Rose 24 gün önce
HEEEEYYYY I HAVE THAT it's so cool to see a disorder I have be focused on omg and what they said is so true! and to see cataplexy focused on too! Like what they said is right! I have narcolepsy and this taught be some things I didn't know about my own disorder! A lot of people don't know about narcolepsy so I appreciate this being put out there!
Lenipoo
Lenipoo 26 gün önce
I thought that narcolepsy and epilepsy was the same thing lol
Ali Playzgaming 2
Ali Playzgaming 2 27 gün önce
Thank you for making this video because I always can’t fall a sleep for 6 hours in my bed my parents thought that I just did not want to sleep when I showed them this video the believed me so thanks
Ghost
Ghost 28 gün önce
I hope the woman that helped Janise has seen this video and knows how far her inspiration went
mile panika
mile panika 28 gün önce
now I don't wanna be mean or anything, but wouldn't narcolepsy disqualify you from getting a drivers license?
Vi Stasiya
Vi Stasiya Aylar önce
Honest to God this video (first saw about 6 months ago, early 2021) is the reason I got started on pursuing a sleep disorder diagnosis given my excessive daytime sleepiness since my teen years . I FINALLY got an official diagnosis today at age 27. Took a sleep study and nap test (mslt)
Justin Baker
Justin Baker Aylar önce
god finding this video after that time i wrote a research paper about narcolepsy for a uni class makes me happy so much of what i learnt was mentioned here and bringing more awareness to it just feels great
Neon Green
Neon Green Aylar önce
I feel bad for that girl... I am also misdiagnosed with bipolar. (When I was 9-10 years old, I was diagnosed with the following : OCD, ADHD/ADD, tics/Tourettes, disruptive mood disorder, and oppositional defiant disorder. *those last two are important* because here, it is illegal to diagnose CHILDREN with bipolar, so they told me and my mom I was bipolar, and put me on BIPOLAR MEDS, but since they put down disruptive mood disorder they got away with it... I took meds for years for something I just didn't have. My current therapist agrees that I don't have bipolar, but she said she doesn't have the power to take that off.. I would have to see another psychiatrist and I'm honestly done with them (I grew up going to several SOME IN A DIFFERENT STATE).
Neon Green
Neon Green Aylar önce
My family has a history of having narcolepsy and sleep apnea. (I haven't started the video yet, but I just want to say I'm glad you talked about this)
Anna MT
Anna MT Aylar önce
I fall asleep super easily, always get 8 hours or more of sleep everyday, but I also take a nap every day, feel very tired, and zone out and get drowsy throughout the day. I wanna get tested for narcolepsy and sleep apnea, bc in comparison to my boyfriend, my sleep is very weird
Chae
Chae Aylar önce
Interview people with Alien Hand Syndrome next!
Chae
Chae Aylar önce
Janis was my favorite out of the bunch
Heythere Nordic
Heythere Nordic Aylar önce
I don’t know what kind of sleeping disorder I have and the doctors here in Norway are so bad at finding it out. I got the test once, and for only one night at home.. And I told them what the problem was, but they ignored it and only gave me the diagnosis insomnia. The problem is I have insomnia too, but it isn’t what the issue is. And I also have severe mental illnesses, but even when I was medicated I had my sleeping suffering. I don’t know what to do and feel hopeless. If I at least could wake up early with 7-8 hours of sleep And feel rested, I could do so much to improve my other illnesses. But I don’t know how to get the right help for my sleeping disorder and how to get the right diagnosis.
vessel_NG
vessel_NG Aylar önce
IF YOU HAVE NARCOLEPSY YOU SHOULD NEVER DRIVE. YOU WILL FALL ASLEEP AT THE WHEEL AND HURT SOMEONE.
Julia Berry
Julia Berry Aylar önce
One of my favorite anime’s actually has a main character with narcolepsy, it’s called Little Busters 💕
Jennyverse
Jennyverse Aylar önce
My experiences have been so similar that my blood ran cold. I have a crazy migraine disorder (hemiplegic) which can produce some of these symptoms, and was misdiagnosed for years - bipolar, conversion disorder, generalised anxiety, you name it. Loads of different drugs, leaving the doctor in tears because I'd been yelled at in front of the friend who had come in to support me. The sheer anger and frustration...I was even told by a paramedic in the back of an ambulance that I had depression, when I was paralysed down one side of my body. One mental health worker told me the awful symptoms I was experiencing in the middle of the night were because I needed a husband!! Eventually I had such a big attack one day at work that I was kept in a stroke ward overnight, and finally got some answers. I really, really feel for Janise. I can relate so horribly.
OopsMyGlass
OopsMyGlass Aylar önce
I once walked over to the toaster put my finger in it, got a electrocuted , i was drunk though so i blAme the alcohol
princely
princely Aylar önce
Please do late diagnosed autistic/adhd!! Or AFAB autistics of any sort
Jessica Fox
Jessica Fox Aylar önce
My first job a coworker of mine had narcolepsy with cataplexy and whenever he would get mad or laugh really hard he would just go limp and fall over. There was a lot of "somebody catch Brad!" Such an interesting condition to have
Aaliyah Williams
Aaliyah Williams Aylar önce
Ughh Narcolepsy sucks! I got diagnosed about 3 years ago. My mom first thought I had mono so she took me to the doctor. Turned out I did have mono so we just thought I just had mono for a long time lol
Miatarshi
Miatarshi Aylar önce
Can you do ME/CFS?
Assaf Recu
Assaf Recu Aylar önce
Wait. My Uncle Has This Idk Sickness Or SOmething That if He Like...Sits Still Somewhere Or Stands Still For A While He Will Start To Fall Asleep- What Does It Mean?
oxin
oxin Aylar önce
I'm wondering if I may have narcolepsy, because I experience cataplexy (I think) and I just. hope I get to understand what's wrong with me
Michael Joseph
Michael Joseph Aylar önce
I’d love to see one on primary (chronic) insomnia. This was great. Sleep disorders are very underrepresented in mental health discussions, or only mentioned in passing as a comorbidity with a different diagnosis.
curbalist
curbalist Aylar önce
i sleep 11 hours 🧍‍♀️
curbalist
curbalist Aylar önce
i also would be punching people at night 💪
Carrington Hancock
Carrington Hancock Aylar önce
Idk if I have this, but I have common dreams and I can sleep all day. There’s more to it but I feel all this. I just wish I could get treatment to see.
Skylar Leanna
Skylar Leanna Aylar önce
Oh my gosh. There’s a possibility of me having narcolepsy? Just putting a name to my issue is amazing. I’ve always thought narcolepsy was just falling asleep randomly? But ever since I was a kid I’ve woken up to crazy hallucinations. Where I’m awake but asleep. Hmm?
Skylar Leanna
Skylar Leanna Aylar önce
Never mind I don’t think I’m in this catergory. My issue is still a mystery lmao
Ella Hopkinson
Ella Hopkinson Aylar önce
Some of the symptoms sound similar to m.e / c.f.s
Hannah
Hannah Aylar önce
21:30 wow, I didn't even think about the idea that misrepresentation can change people's perspectives to the point where they are unaware that they identify with the given condition.
Eʟ_
Eʟ_ Aylar önce
I'm happy I found this, my mom has narcolepsy and it isn't talked about enough, if at all
Radwa Ali
Radwa Ali 2 aylar önce
imagine a video where you spent a day with karens
Sara A
Sara A 2 aylar önce
I'm so angry with that doctor on Janis' behalf, as someone with a conversion disorder. Conversion disorders are a subset of anxiety disorders where anxiety manifests physically. For me it can feel like I've lost control of my right arm, and that does overlap with cataplexy, but if you were to take my arm and try to move it, you couldn't. Some part of me is holding my arm in that position which is *not* the case for cataplexy. If you were to take the arm of someone experiencing cataplexy in it, it would move easily.
h12man
h12man 2 aylar önce
I'm curious, dreams happen during REM sleep, do people who suffer narcolepsy dream more than other people? Also, would that make it easier to lucid dream?
Lavender
Lavender 2 aylar önce
@h12man No problem :) Have a wonderful day!!
h12man
h12man 2 aylar önce
Wow, thank you for helping me understand this condition better!
Lavender
Lavender 2 aylar önce
@h12man It depends! But I will say, all my dreams are incredibly vivid and I am sometimes half asleep and half awake while dreaming. I've had a reoccurring nightmare for a week. But I'd say I do have more nightmares than the average person because I generally sleep more and dream more than the average person! To put it in perspective, I sometimes sleep 24-48 hours at a time
h12man
h12man 2 aylar önce
Thank you for telling me, I have another question. Would you say that you have more nightmares than the average person?
Lavender
Lavender 2 aylar önce
Hi, I've got narcolepsy! I dream EVERY TIME when I sleep without fail.
Charm Serenia
Charm Serenia 2 aylar önce
When she said "yes! I'm not crazy" I wanted to laugh and cry at the same time. I can't imagine this being my reality
Kit Parker
Kit Parker 2 aylar önce
As a future teacher, I value videos like these and the kind people who are willing to tell their stories. I now know that if one of my students is falling asleep in class, I will not blame them or make them feel bad. They may be like these folks and have a sleep disorder or may simply have not gotten enough sleep last night because they had to take care of their siblings. I am determined not to judge or assume, but rather to simply help. Thank you, Anthony and the wonderful people in all his videos.
amyisnotperfect
amyisnotperfect 2 aylar önce
The amount of cups of tea, other drinks & lunches i have had spill over myself because of narcolepsy is not even a joke, the guy was right about 'walking zombie' though, thats completely accurate🤣 i have narcolepsy, insomnia, depression, anxiety & agoraphobia, yay🙃💩
loverrlee
loverrlee 2 aylar önce
My father had Narcolepsy and I might have inherited it too. I can sleep sooooo long every night and not feel well rested and I’m sleepy and sluggish all day. I would get a sleep study but I still haven’t because I had just started getting help with this stuff before Covid so I’ve been putting it off. :p
its fricken kirby
its fricken kirby 2 aylar önce
I've learned more from Anthony then my whole education
Wilson Elder
Wilson Elder 2 aylar önce
Yooo narcoleptic represntation
swampballs
swampballs 2 aylar önce
Off topic but I love your sweater Anthony
Aiden B Arello
Aiden B Arello 2 aylar önce
My cousin has narcolepsy and honestly I haven't really learned much about it. Probably should have gotten around to this video sooner
lovepeace
lovepeace 2 aylar önce
Before Midorine I was only getting 4 hours of awake time. I was sleeping 20 hrs a day.
Necromancer Varen
Necromancer Varen 2 aylar önce
Alternative title: Anthony steals his girlfriend's haircare products.
Heather Victoria
Heather Victoria 2 aylar önce
How is she allowed to drive with narcolepsy?
Laurie Wilber
Laurie Wilber 2 aylar önce
I dig the peediepie jumper
Elisabeth
Elisabeth 2 aylar önce
Man I wish I could of participated in this. I have so much to share about being a parent with narcolepsy and the unique struggles we have!
Jordan Quersher
Jordan Quersher 2 aylar önce
As someone who is genuinely questioning and curious and a tad ignorant about the disorder, should people who suffer from narcolepsy be allowed to be behind a wheel? Shouldn’t it be considered a disability just like how people that are blind aren’t allowed to drive or people who are deaf aren’t allowed to drive? Shouldn’t they make service dogs for narcoleptic sufferers? I just feel bad that these people went through these terrible driving experiences and I’m just trying to navigate these questions I have from a place of good intentions. Please correct me or tell me I’m wrong if I’m wrong because I genuinely want to know and be educated on the subject.
T
T 2 aylar önce
Watching this video, I realize I probably have narcolepsy 😅
Nancy Obi
Nancy Obi 2 aylar önce
These videos are amazing Anthony! Thank you I’m wearing so much. You should spend the day with blind people next . HMU if you need someone to interview for this😊
MoonlightingHope
MoonlightingHope 2 aylar önce
This is such an important topic. I got diagnosed with narcolepsy at age 18 but I've had it my entire life. My mother was borderline narcoleptic but my symptoms were always excused as "being a teenager". For me, the constant exhaustion is the worst part. I am one of the rare people who has all 5 symptoms of narcolepsy, sleepiness, hallucinations, paralysis, cataplexy, and fragmented sleep/insomnia. My doctors used to think I had all of these disorders separately until I went in for lots of tests to discover they were all connected to narcolepsy. I am currently on medication to help keep me alert, but the usefulness is wearing off over time and I am at the highest dose. Due to this, I will probably have to start taking the stronger medications known as "stimulants" which are what lots of people call "legal speed". Which is the exact reason I don't want to take them. For a normal person, taking my medication would act like speed or similar drugs, but for me it just barely keeps me functioning. The worst part about my narcolepsy is that most people view it as a "comedic illness". The usual response I get when telling someone I have narcolepsy is "Oh haha that's so funny! I've seen that in a movie before, you just fall asleep!" It makes me so angry like, how is that funny? How is someone losing consciousness funny? Narcolepsy is so much more than just suddenly falling asleep, in fact that's uncommon for most narcoleptics. What is most common is living everyday feeling like you can never heal from the events of the previous day. It's hell, it's exhausting. And there's so many things people don't consider. I am legally unable to drive because in my state if you have an illness that causes you to lose consciousness, you cannot operate a vehicle. Sometimes I cannot go to work or I have to leave work because I am physically unable to wake up and I sleep for 14+ hours a day. I now have to work part time and don't make enough money, but the government still says I don't have a "real disability" so I cannot get funding. If I were to have a huge narcoleptic attack on the day of my wedding, the wedding is off. Because I literally cannot wake up, it is like I am in a coma. The amount of things I have broken from dropping them, the vivid nightmares I experience every single night. Since I am tired constantly, I hallucinate through out my entire day, not just when I am going to bed. Jobs unwilling to accommodate me because falling asleep isn't "a real disability". My friends and family avoid telling me any kind of big news, good or bad for fear of me having an attack. I feel absolutely useless when my fiancé has to cook for me, run my errands, etc. all because I cant just wake the hell up. I get so mad at myself everyday for having this. "How hard is it to just open your damn eyes and function like a person?" I feel like a burden, I feel lazy, weak, and unworthy. Narcolepsy isn't funny. Please don't laugh at ANYONE for ANY illness unless you know that person and they are comfortable with those kind of jokes. I'm sorry for my ramble.
Justin
Justin 2 aylar önce
all of these videos make me realize just how lucky i am.
C M
C M 2 aylar önce
Type 1 here. My sleep cycles are just like the chick in pink. I was diagnosed at 21 years old and have lived with this for 21 years. It sucks. I hate it. I don’t know what it feels like to be not tired. I zone out ALL the time. Not necessarily asleep, but zoned to the point I don’t realize time passing. My cataplexy is triggered by strong negative emotions and going from a dark room to bright fluorescent lighting. The best was after my first doctor passed away 5 years after i was diagnosed, my new doctor didn’t believe that I actually had narcolepsy even though I have the gene, the 3 days sleep study Showed VERY bad sleep organization (60%+ if REM at night and REM within 5 minutes for all 5 of my naps, AND had a spinal tap done and my spinal fluid was being used in research at the Stanford Sleep Research facility because I had NO detectable traces of Hypocretin in my spinal fluid). I was just like....WHAT???? So ALL tests show positive without a doubt, and you want me to do another sleep study because you think I’m faking it??? She didn’t make make me do the second night of the study because I was in REM for 72% of the first night. She acknowledged I wasn’t faking it.
BethDWriter
BethDWriter 2 aylar önce
I had a friend who liked to beat the person next to her in her sleep. Our other friend described it as sleeping with an eggbeater. I wonder if she pummels her husband?
lucia mack
lucia mack 2 aylar önce
i remember in 7th grade feeling extremely tired, falling asleep in class all the time, every day, and having cataplexy attacks without knowing that it was actually cataplexy. i started looking into why i was so tired, i looked up symptoms of narcolepsy because i had heard the term on tv before, and all of the descriptions matched. i told my parents i thought i might have narcolepsy, and they said that it’s probably just because i’m a teenager, i just need to get on a better sleep schedule. i then started looking into why i fall over when laughing, and found out it’s because of cataplexy, a symptom of narcolepsy; that really confirmed in my mind that i most likely had narcolepsy and need to do something about it. i told my parents and they ended up scheduling me a sleep study at the beginning of my 8th grade year. i entered REM almost immediately in all 5 of my naps lol. i finally got the diagnosis of narcolepsy with cataplexy, started medication, and my life improved significantly. while i am constantly changing doses and medications, (tried effexor for my cataplexy and it got extremely worse for a period of time) and am always still super tired, i am so glad i pushed to get that sleep study because without it i would most likely not be typing this right now and would be sleeping instead. just finished my 9th grade year with narcolepsy & still finished with straight As and a 4.0+ GPA :))) [i do have my temps and am a little nervous about getting my license, especially having to drive by myself] it’s not common to get diagnosed as young as i am and as early into the onset, so if you or anyone think you may have narcolepsy, please advocate for yourself and push for that diagnosis!! i promise it’ll change your life for the better :)
BlakeWasTaken
BlakeWasTaken 2 aylar önce
I have narcolepsy so i know how it is....
Anna V
Anna V 2 aylar önce
I like you pfp
Argus Fleibeit
Argus Fleibeit 2 aylar önce
I knew a woman who had narcolepsy, and she drove her car into a building, somehow setting the building on fire, and it burned down. She was charged with ARSON, and sentenced to TWENTY YEARS of probation. I thought that was pretty harsh. She was treated worse than some people get for drunk driving, even though it wasn't her fault. It make me realize that causing any kind of harm while under the influence of any condition or substance can be very severely punished. I have learned to go park someplace safe and take a nap if I feel at all sleepy.
Kay Gee
Kay Gee 2 aylar önce
Thank you for bringing real insight into our lives as narcoleptics. It's so misunderstood and made fun of in entertainment. I like to make light of mine, especially the cataplexy, but because of how it's been portrayed, I can't even get my own family to understand and believe it.
Stevie
Stevie 2 aylar önce
Janise's comments at the end about advocating for yourself and the lady who came to her bedside to talk to her made me cry. I wish I had watched this or anybody had told me this when I was younger. It took me years to finally go to a doctor for my migraines and to get my ADHD diagnosis. I'm Texan, and the whole pulling yourself up by your bootstraps and admitting you're in pain makes you a weakling really broke me for a long time. It wasn't my fault. It took me years and years to finally advocate for myself and fight for my diagnosis and get the meds I'd needed all along. Thanks Janise, for telling viewers to advocate for themselves. Hopefully less of the next generation has to suffer like we did.
red
red 2 aylar önce
HOLD THE PHONE I KNOW NATE??? HE WAS MY FUCKING THEATER BUDDY IN HIGHSCHOOL HOLY SHIT
red
red 2 aylar önce
i legit never knew he had narcolepsy, but he was always tired during classes. i caught him multiple times falling asleep in the theater seats
Emily
Emily 2 aylar önce
As someone with narcolepsy & cataplexy I absolutely hate it when I try and explain what it is and people always say, "Oh yeah definitely, I must have that too." Or "yeah, but everyone gets so tired." Like honestly fuck off. Have you been told you weren't allowed to drive? Have you had an attack in the grocery store and smashed your head on the shelves? So so many other experiences that just mess with your life.
Emily
Emily 2 aylar önce
Now I'm super anxious about watching it hoping not to run into misconceptions
Emily
Emily 2 aylar önce
Holy shit, never thought I'd see narcolepsy on something like this. Glad for the representation. Love it.
Megan Simpson
Megan Simpson 2 aylar önce
FINALLY ACCURATE REPRESENTATION OF MY CONDITION TYSM FOR THIS IT MEANS A LOT
Megan Simpson
Megan Simpson 2 aylar önce
I have narcolepsy with cataplexy, its nice to see people talking about it outside of using it as a punch line
Irl Trash
Irl Trash 2 aylar önce
My brother and my dad both have narcolepsy, when my brother was younger before he was diagnosed he had this really mean teacher who used to call him lazy and other nasty things she would also fat shame students and throw these small beanbags at students when she was angry I’m pretty sure she was fired luckily
Red
Red 2 aylar önce
I'm not narcoleptic just sleep deprived
jennifervan75
jennifervan75 2 aylar önce
Smart
Random One
Random One 2 aylar önce
OH MY GOSH I CANT SLEEP LATELY BEEN PULLING ALLNIGHTERS UNWILLINGLY RANDOMLY CRASHING RANDOMLY SLEEPING AND I-
Britt Lyn
Britt Lyn 2 aylar önce
i’m almost 100% positive i go into REM phase immediately because i can drift off for about 2 min while watching a movie or lecture and have a short dream/hallucination within that time. i’ve always been a sleepy girl so i’ve always wondered if i have narcolepsy, although it’s not nearly as bad or difficult for me to deal with as the average person with narcolepsy
Oliviya Kay
Oliviya Kay 2 aylar önce
My teacher has this
RainPlayzRoblox
RainPlayzRoblox 3 aylar önce
my moms name is Lauren and she has narcolepsy too 😭
《PattiRose》
《PattiRose》 3 aylar önce
Me watching this video: am I narcoleptic?
b
b 3 aylar önce
so what you're saying is that tori the narcoleptic astronaut was wildly incorrect and offensive ok gotcha
Grace Childs
Grace Childs 3 aylar önce
As a sleep technician, this video is exactly what I learned in school and easily explained by the people with narcolepsy. They are very well informed and it makes my sleep tech heart happy that they are well informed about their condition.
MacMaster2007
MacMaster2007 3 aylar önce
U should do epilepsy next or conversion disorder as it’s not very common and i would love to spread the info
moptheflow
moptheflow 3 aylar önce
I like how in every video, he just casually falls through the ceiling, and no one talks about it!
Togs
Togs 3 aylar önce
His DID video was very interesting, what about other dissociative disorders? Specifically depersonalization/derealization disorder, because it would very interesting considering I probably have it, been talking to my therapist and it has a huge impact on your life. Not self diagnosing, there is a possibility I don't have it, but just considering the fact that people look at it as a not so serious disorder, when it really affects your life in such a huge way.
Aequorea Victoria
Aequorea Victoria 3 aylar önce
I think my mom has it, and insomnia. I mean she is tired suddenly but can seem to never fall asleep.
Anna Mulatova
Anna Mulatova 3 aylar önce
oh wait, that’s what I have 🙃
Marisa Dicaprio
Marisa Dicaprio 3 aylar önce
not me watching this at 6AM......and also going to sleep at 5AM everyday
katie menzies
katie menzies 3 aylar önce
my sister once got told a really dark story by one of her friends about their ex and she was taken by surprise she had a cataplexic fit that was one of the worst shes ever had at a party... the doctor also told us siblings are usually the ones who trigger it the most I'm hilarious asf so ;) I made her laugh while crossing the road once and she nearly got hit by a car? it kind of wasn't my fault because it happens like when you don't want it to? like carrying a hot mug of tea upstairs is a task she can barely do. anyways thanks for reading this if you did it LMFAO okay
Cameron Crowhurst
Cameron Crowhurst 3 aylar önce
Hehe my partner makes me laugh the most, I swear she's trying to kill me 🤣
Wendy Testaburger
Wendy Testaburger 3 aylar önce
I would like to see one about Epilepsy. I don't have it but it can hugely effect someone's life.
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